Hello all,
I hope that you are having a good day relative to your circumstances.
My name is Pete and I am 61 years old.
I am very lucky to be married to my lovely wife Deb and we both have the privilege of being parents to the amazing and beautiful Gracie Mae.
Gracie has a Grade 3 astrocytoma of the left parietal lobe and her most recent surgery (4th) was an awake resection in November.
Following that she had oral Chemo and radiotherapy which finished on 19th March.
Gracie is 19 and prior to discovering that there had bee a recurrence of tumor growth last November was a keen driver who was actively engaged in training for her advanced driver qualification. (IAM).
She was told by the consultant in November that she needed to stop driving which she duly did even though this meant she had to quit her job.
We live in Cornwall and public transport leads a lot to be desired and more than that Driving was a passion of Gracie's which has hit her mental health hard.
We have a review meeting with her Oncologist as she is on 5 days oral Chemo every month as an attempt to control the tumor regrowth.
Her mood currently is very low and as her Dad I feel so frustrated and helpless as I have no magic cure for her.
The only thing I can think to do is put my all into pursuing the return of her license and at least improving her quality of life.
If anyone out there has gone through a similar thing I would appreciate any help / support / guidance that you have.
Many thanks!
Pete
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