We’ve just lost my sister who was 54 to Glioblastoma. She was a mum, daughter and sister and a wonderful, loving and rock to us all. Just 5 weeks! How do I and the family cope with this as I do not know where to start? Just thought I’d reach out.
Hello there. I'm new to this group and I i've been finding it so difficult trying to find questions that I would like answering being on the "receiving" end of someone with a Brain Tumour & not finding out if their behaviour is because of the Brain Tumour...
Hi all, I have brain cancer, there’s no getting past that. However, what was initially diagnosed as a GBM4, was, after 9 years, rediagnosed as an AO3 which, though still terminal, gives plenty of years ahead of me. I was diagnosed back in December 2012...
Hi everyone, I’m trying to find a reasonable quote for travel insurance (I have a brain tumour that is incurable due to position). I’ve been quoted a ridiculous amount to be insured for a 4 day trip to Spain! Any advice or companies I could contact for...
Hi my son has finished radiotherapy for Medulloblastoma tumour which was removed end of March. However for 2 and a half weeks he has literally been in bed as he is so tired, he gets up in the evenings for 1/2 hours only. He is also struggling to eat...
Since January my husband had a brain tumor and ongoing appointments may 2023 operation biopsy and diagnosis was cancer its tough times but I'm afraid of losing my soul mate
My husband has started his 6 weeks of radiotherapy and chemo today. Tonight he says he has a really bad headache, is this to be expected after 1 session
Hi everyone I am really looking for some advice as I am feeling lost and broken. My Dads health rapidly declined over the last month and I took him into A and E last week. He has been diagnosed with a 7cm Tumour on his right temporal lobe. Physically...
hi, im new to this. I’ve had secondary metastasis from thyroid cancer removed from skull and brain. Is anyone here living with large craniectomy? I am living with a hole the size of my hand in my skull and what they call a “parenchyma hernia”. I...
Hi all I was diagnosed as having a primary brain tumour back in November and after my biopsy, it was confirmed my tumour was a grade 2 Astro diffused glioma. Therefore it could not be removed. I have had 40 sessions of proton beam radiotherapy at...
