My Dad had a stroke 3 weeks ago. They discovered a brain tumour and that is what caused the stroke. He lost mobility in his left hand side. He was quite physically fit for his age (72) and used to be able to go on long walks of between 3 and 5, and...
Hi everyone, My husband was diagnosed with Follicular Lymphoma in Jan 2021 and Glioblastoma in March 2022. Is there anyone else in this group who has both? I'm beyond despair at the unfairness of it all that a perfectly healthy man who has never led...
Hi everyone My wife has been invited for spring booster jab for Covid-19. This will be her 5th booster. We sent a message to Oncology team and CNS has replied that my wife can have it if she is happy to have. We are a bit confused re is it better...
Hi all, I was diagnosed with GBM4 in September 2021. I have had a tricky year of the standard surgery, radiotherapy, chemotherapy... And returned to work in October last year. My job has changed and I am now in a job that I don't enjoy and doing work...
Hi all, this feels so bizarre writing to a group of strangers about whats going on in my life, especially when everyone in here clearly has their own struggles to be dealing with, but here goes… in oct 22 my mum (64) was diagnosed with a Grade 4 incurable...
Evening all im new to this group as iv only just got the courage to come on the website , I was diagnosed last year with a brain tumour and I haven’t had any sort of emotions though out my treatment is this a normal thing ? , I just feel so numb inside...
Hi folks. Not been in for a while. I am having treatment now. Radio and chemo. Mines Glioblastoma,and I’m on palliative care. Like everyone in this ‘club’ I am have up and down days. Anyhow, I will poke my nose in and stay in touch.I am not one of life...
My husband is being treated for grade 4 brain cancer. In the last three weeks he has deteriorated so much. I was told it was a urine infection...then it is delirium caused by the infection. He is so confused, his mobility is so bad...today heartbreakingly...
My nuns vision is getting worse and really struggling to see. Anybody experienced this.
I was diagnosed ages ago but only recently found out after surgery, that I have a grade 3 glioma, I'm due to start radiotherapy and possibly chemotherapy together depending on final results of the histology report. I have 2 very young children 6 months...
