First scan results left us a bit in limbo with a residual area of original tumour in temporal lobe possibly showing slight regrowth or could be results of radiotherapy treatment that often makes scan unclear. But inflammation all gone , brain pressure...
Hi, I'm not sure if this is the right place to post, but given that brain cancer is one form of cancer that she is suffering from, I thought I'd start here. My mother-in-law is receiving palliative care for various forms of cancer at present. Given...
We will hopefully get a scan result this week. We hope they say there have been no further changes with my husband's tumour. Waiting is so hard for both of us. He recently went back to work on a phased return to work. It has been good for him to get...
Morning I'm really struggling and just wanted to write things down really. My husband has gbm4 diagnosed last October. Had surgery, radio etc and just finished 6 months chemo. He's doing really well and we are hoping for some stability even very short...
Hi folks. Not been here awhile,but right now I am looking for a bit of help and advice. I have grade 4 Glioblastoma. Terminal. My treatment,as you all know is just to try and keep the tumour at bay. My original radio/ chemo treatment hasn’t worked. Therefore...
It is a difficult thing to say that we've been hurting but I want to write about this because I don't think we are the only ones. The cancer seems to amplify any relationship problems we've had over the years - things which used to be manageable and makes...
Hi, I am looking after my brother who was diagnosed in May 2022 with 3 glioblastamas, he had terrible headaches and was confused, not sleeping, locked himself out of all bank accounts and credit cards, plus many other scary things. He lived on his own...
Hi everyone, I had a craniotomy on Friday & have quite a large scar. It’s early days but looking for ideas on how to cover it up or hide it until my hair grows back. my hair is short so wasn’t sure if a simple slice band would work! any advice would...
Hello, Advice / experience? I’m in discussions with my oncologist, Doc and epilepsy consultant but just wondered if anytime can offer wider advice / experience of taking HRT. I was diagnosed with a rare inoperable glioblastoma 18 months ago. I have...
Hello, so back in April this year my 23 yr old daughter of as diagnosed with a brain tumour, she had surgery to remove 90% of it and had 30 sessions of radiotherapy. she’s on steroids and kepra , as well as clobazam, most days she cannot be bothered...
