After three years diagnosed with breast and secondary bone on the same day the letrazole has been outsmarted. I have over the last two weeks had thd faslodex twice and starting the kisqali in a fortnight. Nurse mentioned side effects im currently very anaemic low haemoglobin and platelets and wondered if anyone else has had thus drug as im the first person my consultant has prescribed it too. Worried about side effects, hair loss etc. Much love Karen
They can’t prescribe the Kisqali if your bloods are down, I had to have mine checked before and just had them done a fortnight into taking it. When yours go back up I reckon you’ll get the Kisqali. Hope the transfusion helps.
My blood was down today, at the low end of normal. They expect it to drop with the Kisqali so they won’t want yours to drop any more.
If you want to talk things through I’ve found the Macmillan and Breast Cancer Now helplines are both great, they really know their stuff and put it all into easy to understand terms.
Good luck and let us know how you et on x
My energy level is very low now on it, I look pale and dark eyed so my bloods must be even lower!
Im getting a transfusion in Saturday but only started kisqali on Wednesday as my bloods were low as i said. Ive been sick once. Xx
Hi so glad to find people going through the same thing on here. It just helps to talk to people with the same treatment. I'm going to be positive going through this I don't know if you feel the same
It definitely does. There is nothing else for it. Be positive.
Nice to hear from you and with the same attitude keep in touch thank you for replying xx
Hi I’m on this combo did you want to know more about it? X
Yes. I started on 3 tablets it wrecked my wbc they stopped tablets after two weeks. Second month, last month i got to week two on one tablet. They have now stopped them while covid19 is ongoing. Still getting the injections i was there today x
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