Desunomab

  • 4 replies
  • 7 subscribers
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i have had 2 cycles of this drug along with ad cal and so far no side effects. I have secondary breast cancer in my spinal cord.

  • Hi  

    That's great to read that you're not experiencing any side effects on this drug, and long may it continue.

    ((hugs))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thank you ! Wish it could be the same for others though. I have always been an active country girl (farming).I find the forum very friendly, like a large extended family really.

  • Hi

    I was just diagnosed with secondary bone mets this week. I’m in shock/denial at present and didn’t really get the chance to ask questions at my appointment with the Oncologist. I’ve been trying to get in touch with the clinical nurse specialist but she hasn’t phoned me back and now it’s the weekend. I know I’ll get my head round it. I went through the same situation when my liver mets were diagnosed. 
    Goldilox

  • Hi Elderberry8, I am also on this drug with Adcal, I was due to have my 3rd one last week but the nurse couldn’t do it because I had mentioned that I had some jaw ache, visit to dentist and all good so she is coming tomorrow but other than that I have had no side effect

    i too have secondary breast cancer in my spine and I am on Abemaciclib lower dose for now and Letrozole and I feel lucky as so far I am managing well