Struggling

FormerMember
FormerMember
  • 4 replies
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Morning, 

Having a difficult day today. My amazing Dad was diagnosed with SCLC 4 weeks ago, since then it has spread to liver, bones, spine and brain. He seems to be going down hill fast, his getting very agitated, dropping things, cant walk too far and is getting breathless quiet easily. He's aching all over.

We have an appointment tomorrow with the Oncologist to discuss a treatment plan, I have such mixed emotions. I dont know whether treatment is going to make him worse with regards to side affects, and how much longer will it give us with him?

I am hoping that he gets to spend Xmas at home with my mum, he wants it just the two of them which I respect, but it will probably be our last Xmas with him and i thought he would've wanted to make it a special one with all the family, but his wishes are more important than anything else.

I am dreading tomorrows appointment as i just dont know what they are going to say.

  • FormerMember
    FormerMember

    Dear what a kind and compassionate daughter you sound to want to put your beloved dads wishes first. As he was only diagnosed 4 weeks ago he will still be coming to terms with everything and may feel he will be overwhelmed by a large family gathering so don’t take it personally. As for whether to have life extending treatment, that is a very personal decision, you have to weigh up the side effects of treatment against any reduction in your quality of life. I’m sure your dads consultant will talk through all the pros and cons and then your dad can make an informed decision, which then must be respected by everyone. Whatever happens next just be there when your mum and dad call for you and also take good care of yourself as you matter too.

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you so much for your reply was lovely to hear from you.

    We have been told Dad has a few months, he is starting whole brain radiation treatment on Monday and has started steroids so have to see how he goes.

    All the family got together with him xmas eve which was lovely and I got to see him today for an hour before leaving mum and dad to their day.

    He had a lager and managed to eat his xmas dinner :) 

    Every minute with him is special.

    I hope you are okay.

    Linds x

  • FormerMember
    FormerMember in reply to FormerMember

    Dear, I so glad to hear all the family got to spend time with your beloved dad. I wish him all the best with his radiotherapy, obviously if he finds it hard going he can stop at any point. It’s such a personal decision and I support his right to choose this path. I think you are right to treasure every moment and leave nothing unsaid. I would encourage you to keep things as normal as possible for your dad as it will be an antidote to all things treatment related as it’s important not to let that side of things dominate everything. Whatever it is that your dad likes to do try to find a way for him to have those experiences even if it means adapting a little bit to new circumstances.

    i am stable at the moment and have had a lovely Christmas Day with my wonderful husband of 36 years.

  • FormerMember
    FormerMember in reply to FormerMember

    I am so happy you are stable Jane and you had a wonderful Christmas Day.

    I hope the new year keeps you well. 

    Thank you so much for all your words of support they mean so much and really help.

    Please keep in touch xx