What next..

  • 2 replies
  • 16 subscribers
  • 1379 views

My mum was diagnosed with scc of the tongue back in march, april she underwent 2 operations (14hours long and 5 hours long) feeding tube fitted, talking slightly, completed 33 sessions of RT in Leeds, which finished 6th August... we were ment to be on the journey out of all this but unfortunately mum gained a sore under her neck..along with a lump on the opposite side of her neck. Tests and scans have confirmed cancer is back.. even after a double neck dissection, letter to state NED...how?! Why?! Its now in her throat, has a tumour on her right collarbone, specks in her liver. She is 72 years old, chemo and surgery were no longer an option. Palliative care nurses are coming to see her today for the first time. I'm numb, I'm very unprepared, I feel like a vulnerable child again (I'm 35 with 3 daughters) dads at home with her, hes been amazing. My elder sister spoke to the consultant after we left and she asked how long...its my mums birthday the 24th December...consultants reply was "people usually hold on for certain dates". We may not get to see mum this christmas then...SweatSweat

What now SweatPersevere

  • FormerMember
    FormerMember

    My mums undergone very similar, with the first section and then thinking it was going away to it being back. its the same type of cancer and my mum too has has a neck direction, and voice box removed. Its horrible seeing them go through so much and it not getting fixed. It is the worst knowing they won't be here forever let alone very long. The time you has just needs to be the best, just cherish everything. I try to think positively because its alll you really can do. cling onto  the good days and push through the bad ones i suppose. 

  • It seems to be so aggressive since the surgery, it's like it got annoyed that we tried to get rid of it once and for all and is back with a vengeance! I met the nurses yesterday and they seemed really lovely, just going to take one day at a time I guess. Thankyou for your reply