so it has been nearly 3 years since my sister was diagnosed and she has fought it every step of the way. Even from last May when she suffered a stroke she still bounced back. We felt guilty because we had no choice but to put her in a nursing home, she needed 24/7 care, but she did understand why we had to do it. Her wish was to stay at home but she is happy where she is. So over time we have watched her deteriorate and her bad days are outweighing her good days now. She has no pain so is comfortable but what do i say to her when she tells me that she is frightened. This is when i feel at my most useless as i cant stop her from being afraid. Any advice would be a great help so i can make her feel like she is not alone through this. Time is fading away from us x
