Hello all, I really needed to come in today as I'm just desperate to get some help.
Mum has breast cancer and last year found out it had spread to her bones. It seemed to be well under control but around 3 weeks ago she started feeling unwell. The doctors scanned and scanned and found some liver mets.
I have spoke to the consultants who read the scans. Light load on the liver, liver function is OK, no jaundice, good candidate for treatment. But she's home from hospital and we are managing the inflammation etc.
Dad is at work, my husband is at work in another city, its just me in the house, this quiet house looking after mum who is sleeping quite a bit as her meds are making her drowsy.
In speaking to her consultant he sounded positive but since Monday she has been home and I'm here on my own until after 5 when my dad comes home.
The worry is eating me alive at the moment. I can't seem to retain the positives in my head from the consultant, I'm so tired and so frightened that I don't know what to do. I wake up and remember and I just feel so low and helpless, worrying about the future.
Please help.
Thank you Walsh, it was really good to hear from you. It sounds like your daughter and myself are similar in worrying about our mums. It's great to hear from you and I hope that your treatment is giving you back
The last few days have been a mix really, mum is doing good, she's eating well, no pain or sickness. We are waiting on meeting her treatment team on Wednesday. I hope they will be positive. I find myself trying to avoid negativity at the moment as it unleashes fear that I don't need added to my mix.
I went to counselling on Friday, I haven't told anyone but my husband but I just wanted to get a little support and be able to voice my worries, it really helped get some strategies to cope a little better. I'm going again on Friday, it's just a little space where I can speak my worries and not worry about supporting everyone else.
We are all just doing our best to support, being a team. Thank you for being so kind and concerned, I'm sorry you're having to deal with it too xxxx
Hi,
hope I am not keeping you up,you need rest.
So glad you have councilling,sometimes you do need to speak to someone else’s outwith family members,as you are all trying to
protect each other,and you don’t want to show your sadness,everybody deals with issues differently.
I will be thinking of you and your mum on Wednesday and very much hope that your mums onocoligist has a plan
Just to let you know.
I have many tumours in my liver,have bone cancer in my hips,pelvis spine.I am on Pablociclib and Letrozole, I have a bone strengther
every three weeks.
I have had my second scan and many of the tumours have shrunk.and rest are stable,to me this is great news.My bone cancers are manageable.I don’t take any painkillers.
I work full time as a receptionist.This keeps me thinking in a positive manner,but don’t get me wrong we all have bad days.
So I will stop rambling on,as you might have noticed I am up late,I don’t know why I am not tired tonight,
xxxx
So glad to hear you're having counselling weekly n that your mum's got an appointment this week re a treatnent plan.
Wow Walsh, I'm so pleased for you, that is good news. In fact that is excellent news. I'm genuinely delighted. This disease is absolutely horrendous but we have so many more options now.
Even when I had cancer in 2011 I was fortunate enough that surgical was the curative for me, but I see the change even now.
I think it's the waiting for someone to do something is really frustrating. No idea what they plan to do, she was already on the palbociclib but our local hospital asked her to come off it until oncology decided what to do.
Lots of love to you, I'm so delighted you're doing well.
Pm
Hope you had a better day today.I have been thinking about you and the strain it must be on you at this time.
could you let me know how your mum gets on at her meeting,but if you don’t want to divulge I do understand.
take care
bw
I've been up and down trying not to let the fear grab me. I find it preoccupies me. It's the waiting and worrying and wondering and ruminating.
I just hope everything goes well at her appointment. I've no reason to feel negative but I do, it's just the worry.
Thank you so much for your support, it's honestly massively helpful to see how wonderful you're getting on.
Pm
Hi,
Yes you are right the worry,takes over and I think it is human nature to think negatively,when you are waiting for answers.
I hope your mum is managing all this waiting and wondering,I think that this is the hardest thing to get your head around.You just want answers now.
So awful that you also had breast cancer,this horrible disease makes me feel very angry It turns your life upside down.
There is no point in asking you not to worry,because you will.But please take care,look after yourself and your mum.
bw.xx
How did everything go.if you don’t want to divulge I completely understand.xxxxx
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