My dad has been diagnosed with glioblastoma grade 4 and is dying

FormerMember
FormerMember
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Hello. I became a member a couple of weeks ago and I'm only just posting because I don't really know what to write and my head's been spinning for the last few months. I suppose I will just tell my story so far!

Around Christmas time we noticed my dad was not well and as the weeks went by we knew something was seriously wrong. With doctors appointments and endless waiting for results my dad has been diagnosed with a grade 4 glioblastoma. It was his 60th birthday on the 24th march and he received the results on the 29th. Since then he has been at home and us trying to decide on what, if any treatment to have. He's been offered radiotherapy but as his tumour is approximately 9cm it will affect most of his brain and will be particularly hard. His moods at the moment are horrendous and he has no patience, he's becoming quite nasty towards my mum (we know that this is part of his illness) and he is beginning to struggle with sleep and simple tasks.

I have no idea how to help, how to cope and how to deal with what is happening and I know the next few months are going to destroy me, I suppose Id like to hear from people in the same or similar situations. 

XxX

  • Hi and welcome to the online community at what sounds like a very difficult time for the whole family.

    I was passing and noticed that you hadn't had any responses to your post. Could I suggest that you join the supporting someone with incurable cancer group and post your question there as well. In that group you can discuss your worries and emotions as well as talk about practical issues. 

    To join this group just click on the link I've created and then choose 'join this group' on the page that opens. You can then post your question by selecting 'start a discussion'. To save typing it out again just copy and paste it from here into your new post.

    You may find this information from Macmillan on coping with your emotions helpful. If you feel that you would like to speak to someone about how you feel then I can recommend giving the Macmillan Support Line a call on 0808 808 0000. It's free to call and open daily from 8am to 8pm.

    When you have a minute it would be really useful if could pop something about your dad's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

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  • FormerMember
    FormerMember

    Hi flea,

    My dads just been diagnosed the same.

    how are you getting on has he decided on any treatment?