Hi all been a strange few weeks .Bill up and down at the moment .He has various symptons now bringing up phelgm which had caused a nasty chest infection four lots of antibiotics havent cleared it up . X rays of lung are clear . He has no energy and appitite reduced . Also the latest brain m.r.i has revealed the enhanced area on the rim of where the last met was removed has got bigger .We were not surprised as some of his neurological symptons had returned .We are of course waiting for oncologist to review this the specialist nurse couldnt say what it meant but to me its showing exactly what happened before when the second brain met developed . He also has a lot of pain around rib where his oesphagectomy was carried out he is on pregablin and morphine for this and had been prescribed steroids several months ago .He was weaned off the steroids last couple of weeks but had to go back on them on a low dose as the pain increased again .The dose has been increased up to 2mg a day again and we know the side effects will too . Im just hoping they get the pain under control and we get some idea of where this is all going . Since last set of treatment Bill has spent more time in bed. he dosent really do much anymore but fotunately he is going to day service once a week at the hospice .They have extended his time it was originally six weeks but they realise it does him and myself good for this break .I just feel in some horrible groundhog day everytime we see oncology they have no answers its wait and see or some more horrific treatment which isnt going to cure Bill .If the treatment had given him a new zest for life and he had managed to do some things then it would have been worth it .But since January he is gradually withdrawing .Its hard to watch and somtimes even after 3 and a half years I cant believe this is happening . Well keep going the steroids will help for a bit hope we can get out and about lots of hugs to you all .xx
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