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I haven't updated my blog in a while. I've been away for a couple of short trips - one with hubby and one with a group of friends - but it was hard for me to enjoy myself as I've been feeling increasingly unwell.
Yesterday we went to Christies. I won't bore you about the 1.5hr wait for a pointless blood test, or the 2hr wait to see the consultant, or the 1hr wait at the pharmacy, or the fact that we didn't see the consultant at all but one of his registrars. Actually, his registrars...
Today. I should have been attending UCHL. to be assessed for a Cystectomy. all week I have been waiting for a phone call or letter confirming this appointment. none came. so I took It upon myself to find out why.
My god! what a fiasco. I phoned UCHL to find out why I had not been Informed about the appointment. they had never heard of me. they put me through to the clinic. they had never heard of me. after two hour's of being passed from one department to another I gave up. I sat back and had a...
It's two weeks since treatment stopped and I'm feeling now that I'm seeing the small steps to recovery now. The phlegm has definately reduced but I do wake up needing to have a good cough and swill my mouth out. Some days I wake up and my tongue has really swollen. Last night I woke at 4am and had a voltarol tablet and it seemed much better when I woke up this morning.
The Wiltshire farm food meals arrived yesterday and I completely cocked up cooking the first one. But after some tweaking...
Well went to CAB last Friday, where we actually found out what had happened, where the CAB rang on my behalf. In their wisdom they stopped my payments when I turned 60. They admitted that I am entitled, but because they have now closed the record, I must now make a new claim. Which they are unlikely to back date the 3 months + to my birthday. Result I have lost 2 and a half months money.
Gets better, they now want all their money back 1200+, and on only 800 a month take home, that will be interesting...
I did not think I would be back here. I actually thought I was cured. I was wrong. I saw my consultant last Thursday. she told me that the dead tissue they had found was In fact a tumour. four TURBT'S IN TEN MONTH'S. six week's of radiotherapy. all a waste of time. I agreed at the outset to have my bladder removed. now they are talking about salvage surgery. the removal of my bladder. If this had been done at the outset everything else would have been avoided. the cost of the treatment's I've endured...
The phlegm has definitely reduced a lot. I haven't had to use the spitting glass all night. It's still thickish in my mouth but more saliva like in texture.
I ordered some puréed and soft meals from Wiltshire farm foods yesterday that arrive on Thursday. I did try some fish pie on Sunday and soup yesterday but it was quite hard work.
I feel as though I have less energy this week than last week. Maybe because I'm not managing to eat as much.
Was quite down yesterday, something...
