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Well, This Is It .. I don't know why I have been chosen to take a journey I have no wish to go on - BUT this journey is here for a Reason? Be it for me or for someone else. Is it a punishment? I don't know! Is it as a reason for something that happened in my past? A beastly side effect for all of the experimentations of having IVF x 6 tries - IVF was full of Hormonal starts/Hormonal stops and other awful drugs which pushed my body to the limit and sadly for me, it never did result in my having...
After the anxiety of this morning with my partner having a fever again, I am relieved to say that he has started the new chemo: Clofarabine (I think), usually for children with refractory (e.g. relapsed) leukaemia that has become drug resistant. He is also changing pain relief but said he can't tell any difference at the moment, except that the newer one tastes vile!
While I accept that it may not work, I am just glad he was well enough to start it. His mum and younger sister are visiting him...
well its been 7 months (I've had to count this in my fingers) since Steve died and the tears have now subsided or so I thought. Last night I had a parking problem and tonight i've been watching tonights the night. Well both have reduced me to tears but I turned the TV over and now I'm watching Mama mia while if I go outside I can hear the outside JLS concert at Escot. Pierce Brosmans singing or lack of it brings a smile to my face and through this sadness life goes on.
Stacey
Well, it is now 4 weeks since my last chemo, so I am offically in remission. We have been going away on the 2nd week after chemo, as soon as I was feeling fit enough,and coming back in time for bloods and my next lot ot treatment. We stayed away longer this time, and I came back feeling better, and didn't have to go to the hospital, so now I've got to find something to fill the time when I'm well. I actually went out gardening with my husband properly today, instead of watching him and...
How on earth do i get through the next 2 days we have been so busy in the week since dad went to sleep but i really don't want monday to arrive, i know i am going to be a mess. Worst of all i have got to get through 'Race for life' tomorrow. I say 'got to' because i promised my dad i would and he wanted me to. I dont think my legs will work. 
Had a lovely birthday this week, went off to St. Thomas' for my first meeting about my RT. The staff were lovely and the first nurse took my head and shoulders photo for my file and asked me loads of questions including was I pregnant (ha ha ha!!) said I, she said they had to ask all women aged 12 - 55 the same question!!!!!! I then sat in the waiting room and a young lad who looked about 12 called my name and off I went like a lamb with him to the CT room. Fortunately there were two other people...
Hi there
Well, the bad news was that the ALL was back with a vengeance. To cut to the chase, my partner's consultant is going to put him on Clofarabine. 20% chance of it working (max). My partner has had an infection for a couple of days which always seems to come on during the night. He needs to be fever free or they won't start him on the chemo. We all just have to wait today to see if he can start. He is really scared he won't be able to and that they'll give up on the idea of it in which...
Looking to the future - talk to the Macmillan nurses who visit the wards where treatment takes place re financial difficulties if unable to work, benefits, grants, disability aids etc, and find out if there is any help available whilst you are receiving care.
Checkout free prescriptions with your specialist, once diagnosed you will be entitled to an exception certificate for medicines. Ensure you get a sick note to cover you at work whilst having treatment. Ask about Carers allowance for...
My partner was diagnosed with non hodgkins lymphoma - aggresive, in july last year - six months after discovering a lump in his left groin that grew to the size of a tennis ball. Following the biopsy and removal of the lump he developed kidney and stomach pains and suffered drenching night sweats, he was told he would need chemotherapy.
We were both knocked for six by the diagnosis, I closed down our businesses and I took on the role of carer whilst he underwent chemo.
We too like many of you...
