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It has been a while since I last blogged an update the title of the blog should explain why!!!!
Alot has happened in the last 2 weeks.
Aunt and cousin came over for four days to give help and support, it was great to be able to laugh at the situation for once. They went home about a week ago and things have steadily been in decline ever since.
Mum has had some good days and very bad days. The difference in her in the last two weeks is heart breaking she can't walk properly, she can't talk properly...
Well that was confuzing to fynd!!!!!!
Just lital messig to say fank u, to evry1. I fink of u all the tym and I miss it heer. I WILL get beta, is blimmin hard work but i tryin. Is not eezy, sumtyms I wan to stop, coz it herts, but today I feel gud and that helps lot.
Nex week is hopeful get my gamma startid. That wil b scary, is all v scary.
Now I am tiyrd! Fink is nap tym agen.
Love love love love love to u all.
Fank u 4 messigs on heer and on my fb , u keep my hart happy
Cadee xxxxxxxxxxx...
For anyone interested there was a radio phone-in this morning about the cancer drug funding (or lack of it) on the Vanessa Feltz show BBC Radio London - and I spoke to her for ages about it.
You can listen to it on bbc i player from tomorrow I think, and I was on around 11.30 am talking about cyberknife, funding, drugs etc.
Hoping I have done this right, and it should appear in my Blog for Davids_cancer_Story.
Thank you to James Burnettfor helping to point me in the right direction and get my blog. I couldn't even remember exactly what I had called it.
Because I did this blog already, I am going to be brave and try and do 2 blog posts. Fingers crossed.
So last Tuesday David's headache was worse and they increased his steroids and the following day he was feeling tons better to the point that on Sunday he had...
I had a problem with the carers today because they had sent a NEW carer around to help Mo today, at 11.30am. When Mo/I were assessed way back when, I specifially said that I wanted no carer visit BEFORE 1pm, anytime after was fine. The reason being was mo has her meds first thing in the morning and then she usually rests for 1-2hours. After Mo has had a rest she tends to be a lot more mobile and interacts better with people. having a wash,getting dressed etc is easier whereas earlier its more difficult...
So tomorrow, I go off to the Heath (rather be swept off by Heathcliffe but you can't have everything) in Cardiff For the PET Scan (nope, no ducks or dogs will be involved) to be injected with glow in the dark stuff but instead of throwing star shapes I have to sit perfectly still for 90 minutes. . . so I'm taking a book!! I can't have anyone sit with me as I'll be very radioactive so I guess it's another opportunity for chilling out with a book eh?
After 90 minutes they then...
Doc told dad that stopping sutent because platelet count low (has been dropping apparently over last few blood tests) and potassium low. Will give potassium supplement and may consider putting back on sutent at lower mg than before. Temp still up at 38.
Dad walking around & out of ward with his visitors when they leave him so that he gets some fresh air - so that seems more positive. Terrible diarrhoea though! Occupational therapists seen him and said "oh, you're fine getting around on your own...
Portacath went in today - up at 5.40am and taxi at 6.30am to get us to the hospital by 7.30am.... what an early start!!
The staff were wonderful and very reassuring and cheerful - we met the anaesthetist and surgeon and then my husband was taken to surgery at 8.30.
Whilst he was away I took the opportunity to meet my godson, whom I had not seen for some time as he had been away. We met for breakfast just around the corner from the hospital and it was wonderful to talk about him and what he has...
