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I never thought I would write my own blog but today I feel the need too.
In October 2015 I was diagnosed with HER2 positive carcinoma & DCIS but no spread to sentinel nodes. I'm normally fit & super healthy, no one in my family has ever suffered from breast cancer, in fact both of my grandmothers are still alive, so the news came as a massive shock. As the area of micro-calcifcation was very large 4.5x2.5cm I was told that the best option for me would be mastectomy with immediate reconstruction followed by chemo & radiotherapy.
I started my second cycle of chemo on Friday. Infusion of Oxaliplatin and Capecitabine as tablets twice a day since.
My first cycle was fine but I'm struggling a bit more now. I've been getting increased pins and needles in both hands and also occasionally in my feet. Also I've been experiencing increased bouts of nausea and increasing fatigue.
This is all to be expected as I was told that the side effects are accumulative. We'll see how it goes.
Apart from this I'm still positive...
Hello all three and a half of you!
I'm in that slightly surreal stage of being told my fit and healthy dad has 2 months to live. He's only been ill for 5 weeks. I know the NHS is speeding things up to unblock beds and get through backlogs; I would have hoped for slightly more time to convey everything that's just landed, like Tim Peake from a thousand miles above, on my shoulders.
There are simply too many things to try and wrap my head around. The Macmillan nurses are at dad's house...
I am now a year on from my diagnosis. I had a 1.5 cm left-breast, invasive lobular cancer, surrounded by DCIS and LCIS taking the whole area up to 6cm. It took five long, painful and distressing weeks to diagnose the extent of the disease and decide on treatment.
In August 2015, I had a left breast mastectomy and reconstruction with implant using a dermal sling.
The two weeks afterwards were so surreal; lying in bed most of the day, the world carrying on without me it seemed; my friends and family...
so I havnt filled in the details of the surgery yet, I may or may not do a catch up ( memory is fading, bit like you forget the worst of giving birth - for me anyway.)
I am cancer free, it has been cut out and gone, according to surgeon.
today, I still have a dressing on my boob, the scar has not completely gone, there is a huge black scab? that needs to fall off, if it was a normal scab on my knee for instance i would have picked away at it, just as well as the dressing is still there.
I didnt realise...
I'm highly worried at the moment. I'm 24 and a mum to a 4 year old and a 2 year old.. but I'm looking for any help support and guidance that's possible about there as I'm scared out of my wits... around 3/4 years ago I had a lump develop on my right jaw line I thought it could probably be a abscess or something so I kinda left it for a while thinking it would burst and empty itself and go away but then I got worried as it used to hurt and it was very hard and it was noticeable on the side of my face...
I was diagnosed in April, and have been taking a hormone drug 400 mg per day since. Feel better generally, but good days and bad days.
Hello again friends
After a short time away, I thought I would put in a blog post, to share our journey so far
hope you have been all well in the meantime xx
Since my last post, my love Pannie has had two tests. Please excuse the simple way I write this! Im learning fast though
Pannie had a tissue biopsy of the gland in his lung which we were told was swollen 'a little like tonsils would be swollen with tonsillitis' They came back, and we were told the test was inconclusive
A couple of days...
I still have memories from an early childhood, the anxieties I suffered in primary school, the terrible lows I experienced in my teens, without even telling my family because of the shame I felt, until eventually the culmination of a nervous breakdown at the age of 41, incurring other incapacitating ailments throughout the years, until recently receiving another diagnosis. So many of us suffer from illnesses we most likely wish we could do without but we learn to cope with them in our own ways, more...
