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Well, my desens nurse had a cold while I was getting chemo and being desensed. She wore a mask intermittantly, coughed and sneezed away from everyone and into her sleeve; told me how handwashing is very important in the spread of colds, etc. And guess what? Can you guess? Yep...I have a cold...five days out of chemo and nearing my nadir...hope my poor old body can shake it before the coming of nadir! And this I can assure you...No one who has a cold will ever take care of me again. And don't you...
I'm writing this as a diary and journey through this time with my sister. By blogging on here I hope people will offer me advice and maybe gain some information through these times - hopefully some light moments as well. Other reason is that depiste the fact I won handwriting competitions when (a lot) younger my handwriting is crap so I wouldn't be able to read it back ! I find it easier to write down my words to express my thoughts than to speak them out - easier to edit them before I say...
After 3 wonderful days with my husband visiting my sister in Norfolk, and one full days' shopping trip with 2 friends, I'm now exhausted.
Done nothing much today, just some housework. Hope I get up on time in the morning as I have to drive to Mums to change her smoke detector batteries.
Hello, I work as a volunteer in a Macmillan cancer support and information centre, Middlesbrough. Has anyone out there had any contact with such centres, and how usefull was the experience.
I went for my 5th chemo 3 weeks ago, to be told that I had responded well, and didn't need number 5 or 6.
The docs brought my CT and PET scans forward, which I had nearly a fortnight ago.
I
was supposed to go and see the doctor about the STC last week, but I
got a phonecall cancelling it - of course no one would say if it was
good or bad news on the phone.
I already had an appointment for today, so off we went this morning....
Unfortunately today's appointment was mainly bad news, not good news...
Well Dads Macmillan nurse called me this morning (I had met with her the 1st time she seen dad and asked her to keep me informed as I wasnt able to be there every time she came, which she very kindly did) I told her my fears about how dad looked awful when I seen him the other day, she said that he looked fine but could be making himself appear to be ok for her benefit which makes sense because after she left he fell asleep 3 times in a hour so she thinks thats what it is. I told her my fears about...
Hello, well thats the stem cell transplant over, and to be honest its a bit of a strange feeling!! My part went exceptionally well, my sister needed 5,000,000 stem cells and after my not so painful GSCF injections (the injections were not painful, the bone aching and all that went along with it however was!! Although i felt better to be going through a little bit of pain on her behalf!) i was able to provide 18,000,000!! To much for them to store, so they had to cut my time on the machine short!...
Went in on the 7th September let out for a day around the 16th then back in til 26th - I did stick my head round this new door a couple of days ago but it seemed too much like hard work - someone had rearranged the furniture...sorry.
Hope everyone's alright and heading in the right direction. I didn't have internet in hospital so no blog so not sure where to start, really :) In no particular order - met lovely What Now lady on my ward which was pretty cool I thought; Hickman line #1 inserted...
hi everyone, sorry i have not been in contact for a while, because i have looked after my dad till the end. dad passed away last tuesday and his funeral is on wednesday. my mum needs keeping an eye on at the moment as well, so i have not had time to do anything , as i am a only child it is all down to me, and i am meeting myself coming back at present. D ad put up a brave fight to the end and never complained once. I dont know what i am going to do without him, my world has fallen apart. I will catch...
