I went for my 5th chemo 3 weeks ago, to be told that I had responded well, and didn't need number 5 or 6.
The docs brought my CT and PET scans forward, which I had nearly a fortnight ago.
I
was supposed to go and see the doctor about the STC last week, but I
got a phonecall cancelling it - of course no one would say if it was
good or bad news on the phone.
I already had an appointment for today, so off we went this morning....
Unfortunately today's appointment was mainly bad news, not good news.
My PET scan showed up positive cancer cells - which means all my cancer is still 'active'.
The tumours in my chest and neck have shrank - which is good, but they are still active.
The tumour under my arm has grown by 17%.
My cancer has (in simple terms) become 'immune' to the chemo regeime I was having.
The
docs have said no more chemo because it's obviously not working - this
is because it is a relapse, so the cancer has got used to the drugs.
My transplant (STC) I was going to have has been cancelled.
I will still be having a transplant, but it will be from a donor, and won't be for at least a few months.
I will be put under a clinical called 'ReACH' (Reduced Intensity Allografting for Chemosensitive Hodgkin Lymphoma).
Unfortunately
this hasn't opened yet, so I have to wait for it to open, whch will
hopefully be at the end of this year/start of next year.
I have
to go back to hospital in a month to see if anything has 'grown'. If it
has, and if my cancer contains a particular cell (CD25) then I am
hopfully eligable for a type of immunotherapy treatment, but I will
have to travel to London for it, as the hospitals up here don't do it
at the moment. (I can't remember the name for this treatment, but it
began with a 'B').
So, there you go.......I think thats everything......
