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This is a major step forward for my brain so i'm not going to apologise for the length. Nope. I'm not...Hope it's useful for someone. February 12th-14th So got to stay at home from Friday evening to Sunday afternoon. I now hate the thought of going to hospital and see it as a major interruption to my life - I think the fact that I’ve had just one week of being home and feeling ok since xmas eve might have something to do with it. So we set off with me sulking like a four year old...
I wasnt sure how to post this on the Melanoma forum so thoughi would try a Blog. As you can see from my profile had a mole removed from my ankle two years ago, groin dissection etc. I was all clear at my checkup in January and all was fine until I had a fit on Sunday. Was rushed to A and E where they thought I had suffered a stroke. After endless tests I was discharged and told to go back to the Royal Marsden where they told me the cancer had spread to my brain and liver with lesions all over my body...
February 8th My dongle’s not working in this room! Wait for bloods to come back then 9.15pm start eating 12 simpsons ice poles to try and numb mouth before Melphalan. 20 minute infusion. Half dozed off after the 7th lolly for 10 minutes - wonder if I’ll pay for that lapse in concentration later…Then etoposide 8 x 3-hourly bags + ondansetron for anti-sickness. No sleep tonight then. 1st two ok then they decide to get blood while they’re at it. Line very sluggish then she draws...
Hi everyone. I'm looking for some advice if anyone can help. I am due to start maintenance therapy next week. I've to have IV Rituximab every 3 months. I'm feeling a bit down as I thought I had finished my treatment for a bit. I was thinking of trying St Johns Wort. Anyone know of any side effects or reasons why I shouldn't?
HI, MY NAME IS SANDRA AND COLLAPSED ON 20TH JAN WITH SECONDRY BRAIN TUMORS THEY HAVEN'T FOUND THE PRIMARY YET. I JUST DID MY 10 DAY INTENSE RADIOTHERAPY AND AM NEAR ENOUGH BALD NOW. NOT A PRETTY LOOK BUT GOT A NICE WIG AT THE MACMILLIAN CENTRE YESTERDAY, SO THATS A BONUS, JUST GOT TO SAVE TO GET IT CUT. I DON'T KNOW ABOUT ANY OF YOU BUT IM HAVING AWFUL TROUBLE WITH THE SOCIAL SECURITY PEOPLE AND AM STILL WITHOUT ANY SICK PAY OR MONEY COMING IN AND JUST GOT MY P45, THIS ALL GETS DIFFICULT...
Hi everyone its been awhile been looking after sarah. Sarah has not been well for a few weeks now on the first week she just satyed in bed and the second week she was in hospital with a collapsed lung. She had a chest drain in for that and it didn't infalte the lung so the doctors got it out. she came home last nite and doing ok. After speaking with her doctors the other day they have told us there is nothing esle to do so everything has stop an dnow we are just waiting it could be days weeks or...
its been a long day today. couldnt sleep last nite as mind was churning over stuff. woke up feeling like hell and exhausted. was seeing my oncologist today, so big day, the usual worries about 'hope my bloods are fine' hope this and that..
anyhow got told my white cells are low so no chemo this week. he is going to review things next week. feel a bit worried as lots been going on since last week and I am sure its partly contributed to it all. also relieved as i am not in teh right state...
Dear Blog sorry i have not been here for a while .
Mum has come out of hospital and is to stay with us until the end .
I seem to be making endless tea and taking endless phone calls ( mum cannot hear on the phone so i have to relay ).
I am trying to work at home also , mums TV is SO LOUD i think cross then i think well its not going to be long she has to have her pleasure.
Today we went to see the onecologist at Taunton mum has opted for no treatment ,the big C is in her Brain,Kidney and through...
well i have not wrote on here for a while as i have been poorly but i thought i'd update you now that i'm back on track.
it all started 4 weeks ago while i was having a break after chemo to go onto chemo/radiotheraphy, my symptoms started to get worse, i started to develop some lower back pain and i had a bladder issue to, so i went to my doc and was admited straight away to my local hospital, i was transfered to my usual hospital the next day and i received emergency chemo and a pet scan...
What can i say today is a great day . My boy has done it got the all clear im so so so happy and proud of him. As soon as the doctors told him he said he wants to join the gym on monday. I have said wait till they take the port out which happens on the 29th then he can do what ever he wants. Its just not quick enough for him he is a trooper .
Im doing ok still dont believe it but it will sink in and i will be ovewr the moon
I would like to thank everyone for the help and support you have all gave...
