well i have not wrote on here for a while as i have been poorly but i thought i'd update you now that i'm back on track.
it all started 4 weeks ago while i was having a break after chemo to go onto chemo/radiotheraphy, my symptoms started to get worse, i started to develop some lower back pain and i had a bladder issue to, so i went to my doc and was admited straight away to my local hospital, i was transfered to my usual hospital the next day and i received emergency chemo and a pet scan, i stayed in hospital while they monitored me, results were not what we hoped for more infected lymph nodes in pelvis and up and down my spine my tumour had also grown.
they decided not to give me the chemo along with the radio and just do radio on its own, as they were now having to cover a larger area if they gave me chemo it would have made me too poorly, they know best so i thought ok thats fine.
My tumour has corroded part of my bladder so i have had bilateral nephrostomy's put in, not at all pleasant but it has sorted out a problem. And i am learning to cope with them they have been in 3 weeks now.
I have now completed 18 external radiotherapy sessions another 7 to go, and so far have done well skin ok, not liking the loose bowels but i'm coping, i just cant tolerate food at all just now makes me sick and i have had to have 1 transfusion.
I start my internal radio 8th of April and have 4 lots of that to get through.
I have had a few lengthy talks with my oncologist about treatment and prognosis and admittedly i have known from the start the stats showed me a very poor prognosis, she has told me its very unlikely they can cure me only prolong things hopefully. we also spoke of time, i will not write what she has told me as i just wont believe it, i am not in denial i have used it wisely to prepare things for my family, but even though it has been a tough few weeks i do not feel unwell yes i am tired and suffering from side effects of the treatment. I just dont understand how someone can give me x amount of time, as the way i see it i am still going through treatment etc it might just work. There is hope and i believe miracles do happen. And most of all i know they can get things wrong.
love Sarah x x
