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I am a 39 year old mother of two beautiful girls and it has just been confirmed that I have HL. Apart form the initial kick in the guts, I feel like I'm having an out-of-body experience? does anyone else feel like that??
My major concern is how much to tell my girls, who are 8 & 13 and having to tell my dad and brother was for me worse than actually being told of the diagnoses myself!!!
I now feel that I have my mask on, my emotions tied up nicely! and every one has been told to deal with...
ok I'm really finding out who my real friends are now!! And I am very suprised....
Today was my mum's planning pre assessment appointment for her radiotherapy which was fine, although really strange for me to be sat in the waiting room instead of calling patients in!! My mum was really grateful I was there and I'm so glad I could drive her etc. She is due to have 18 fractions of treatement starting on mon. I feel quite gulity as I will be in switzerland then not getting back till late on wed...
We finally got the results of my dads bone scan. It appears there is a hot spot in his right femur. Basically its cancer thats come from his kidney. The doctor rang today to tell us and that my dad had to go straight to hospital to have pins put in his leg as it could break at any time. I'm sat waiting for my husband to pick me up to take me to the hospital. In a way it's a relief because at least now we know what is causing all the pain. Does that sound bad or selfish?
Bad night last night... sobbing like a baby. Very difficult to bear all this and be alone. Dear old Don, the old friend in who's extension I'm staying in until I'm permitted to go to Southampton, is sympathetic enough for sure, but it's not quite the same as having a girlfriend to share with. Yesterday should have been the day that I went to Dublin to put in for yet another India Visa after the enforced two month gap that tourists now have...but of course I couldn't go. I'm no...
i can't believe i abseiled 177 feet what a scary but fantastic experience i would recommend it to anyone challenge yourself a uplifting day was had by all young and old alike it was so exhilerating watching nearly 70 people do this wonderful thing seeing and speaking to them feeling very nervous before and then again after seeing how excited they all were was just a fantastic day thanks macmillan for putting on this event hope there will be lots more to take part in i am sure as a patient i can talk...
I am complety baffled about our oncology appointment today. Three weeks ago I said to David I don't think we need it and suggested we cancelled it, he said we should keep it as they may be give us some further information. This morning David said I guess the appointment this afternoon will be a waste of time, I told him I said that three weeks ago.
Anyway we went expecting them to say we won't need to see you anymore. Not so.
When we arrived there was a form for bloods, which considering...
arrived at hospital at 12 miday as requested...finally got seen my plastic surgeon at 4.30! op went ok...have to see gp surgery nurse in 1 week to make sure it looks ok and then back to melanoma clinic in 3 weeks for the result... which if course is the worst part... thank you jeff for picking me up from the hospital and taking me all the way home...and thank you everyone for the positive thoughts...
Hi folks
As promised here is the update from the surgical team.
I have been told today that they are going to operate....OMG!!!!!!! I am booked for surgery on 15th July, a few days after I come home from Spain.
So cant believe all this.......but happy days! Still in shock........
Abfab
xx
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