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We have registered the death and been to the funeral directors to arrange all the required paperwork. We have confirmed the date.
Now I just need to sort out the music, never been my strongest point. I'm more of a "if I hear a song I like I get it" kinda person rather than intro who sings what.
Thank goodness for the internet!
The Hymns I have chosen are:
In Heavenly love Abiding
Lord of all Hopefulness
David has welsh relations, some of which are members of the welsh choir...
Well, as the other one seemed to work, here goes with the second one.
Because hubby was getting very agitated he was prescribed Medazipan, which I keep calling Marzipan!
This helped to make hubby relaxed by Friday and not agitated. The nurses also informed me on Friday that hubby is struggling to swallow and is no longer eating or drinking anything.
Friday and Saturday he would open one eye but not for long, drifting and very sleepy. But smiles at things you say, especially memories and things...
So after getting PET scan postponed until the 10th, off I went to Nevill Hall for chemo #4. Jo came to chat with me during the last hour :)
My ''positional'' hickman line played up so I wiggled in chair and flapped some arms etc and then discovered that if I pulled my shoulders back, it flowed freely lol!
So I sat with correct posture and nearly offered to balance a book on my head... ;)
Back home and at abouy 4pm felt myself getting cold and shivery - aha I thought, it's going to be...
Charlotte the carer came round today at 2pm and gave Mo a wash and washed her hair today.There was some initial confusion between the A1 care co-ordinator and myself regarding the times but it was eventually sorted.I also had Helen (getting slightly better remembering SOME names lol) from A1 carers visit today,later than planned to talk about a sitting carer for Thursdays.Unfortunately earlier on this morning I had a phonecall from the Carers Association saying they were unable to supply a carer...
I had to make some phonecalls today,A1 Carers,Adult Social Care and the Carers Association. A1 Carers to see what time Charlotte was coming,2pm today,Adult Social Care to inquire about the sitting carer,I didn't know what company it was turned out to be A1 Carers.I didn't realise A1 Carers & Quality Homecare were the same company let alone responsible for Mo's personal care and my respite care which is ok as its easier to deal with one single agency and not two or three agencies.I also rang the Carers...
It has been a while since I last blogged an update the title of the blog should explain why!!!!
Alot has happened in the last 2 weeks.
Aunt and cousin came over for four days to give help and support, it was great to be able to laugh at the situation for once. They went home about a week ago and things have steadily been in decline ever since.
Mum has had some good days and very bad days. The difference in her in the last two weeks is heart breaking she can't walk properly, she can't talk properly...
Well that was confuzing to fynd!!!!!!
Just lital messig to say fank u, to evry1. I fink of u all the tym and I miss it heer. I WILL get beta, is blimmin hard work but i tryin. Is not eezy, sumtyms I wan to stop, coz it herts, but today I feel gud and that helps lot.
Nex week is hopeful get my gamma startid. That wil b scary, is all v scary.
Now I am tiyrd! Fink is nap tym agen.
Love love love love love to u all.
Fank u 4 messigs on heer and on my fb , u keep my hart happy
Cadee xxxxxxxxxxx...
For anyone interested there was a radio phone-in this morning about the cancer drug funding (or lack of it) on the Vanessa Feltz show BBC Radio London - and I spoke to her for ages about it.
You can listen to it on bbc i player from tomorrow I think, and I was on around 11.30 am talking about cyberknife, funding, drugs etc.
