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The day before yesterday, the oncologist told us the biopsy on the "suspicious" spot in M's hip shows cancer cells from his primary bowel tumour. The curse of being a nurse is that she doesn't have to say any more. I know immediately: I'm going to lose him.
I've lived with this fear for over a year. I knew it was coming - have done since I realised that damned doctors had missed the diagnosis for at least three years, and that by then he was too unwell for chemo..
But...
I don't know where to start this blog really or even why i've joined this community. We lost our darling granddaughter on Christmas morning and it all still seems so surreal. I know she's gone but somtimes I can't comprehend that we will never see her again. She was only 11 - so much potentiial....................
What is wrong with some people? How can some get things so terribly wrong? With all the shit I've been through, I still find people who, even though I've turned my back on them (LONG AGO), think that I have any feelings at all for them other than deep deep hatred? Reviled, loathed and close to wishing they were dead. Certainly wishing they'd been diagnosed with Cancer and not me. Yes, it's a terrible thing to think or wish on someone... but to me you're not even human.
If you...
Hi There!
I've never been a great talker. If something is on my mind I can sit for hours telling you what's wrong in my head when you ask, but I can't find the words to verbalise it. I find it easier to write things down, my mum jokes it would be easier to get answers out of me if she just text me even when she's sat in the room with me. I find writing things down easier to do, I can think about what I want to say, I don't miss anything out. I joined this community last week...
Case Scenario 1
Employee has worked for same company for over 21 years. The company is a small family run business in the Service Sector. The company operates legally within the SSP system and does not have an Occupational Sickness system in place. The employee is classed as a key worker within the business. The company has one other employee working in the office as an administrator.
On my own personal experience I half expected from reading up on the signs and symptoms of my own illness...
Equal rights for employee’s is based upon employee’s who are working for employers who do not operate an Occupational Sickness Scheme and only work within the United Kingdom Statutory Sick Pay Scheme.
What SSP means is that the employee’s sick absence must fit within the laid down qualifying criteria to qualify and if they do not fit into the laid down criteria then they have no redress for pay during the period that they are off.
It is also aimed at equalising the legislation...
When you are diagnosed with Cancer the last thing on your mind is work.
Then you wake up and realise, if I do not work who will pay my bills.
If you work for a company who quite legally works within the framework of SSP do not count on getting any help.
everything went so well yesterday....
The staff at rosemere were the best...they kept me informed and relaxed through it all...
MRI at 8am.....then measured up and a face mould and cushion made.....it really was like having a facial.
went home for a couple of hours...soon as i got back the staff were there to tell me what happens next....
4pm they started......the mask was a bit tight to start with but after breathing it warmed up.
I wasn't left alone much...lights were on most of the time....
Well we are getting better at this stuff. Armed with a million questions, we trotted off for only the 3rd consultation with the oncologist since my husband's diagnosis. You'd think I'd be quite good at this sort of thing by now, having spent the last 3 years accompanying my husband to consultant appointments after his accident and after the same sort of thing with my Ma, who died in the summer.
Rubbish. Each occasion is different. Each condition has its own jargon. Ask me if I'm wiser...
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