Life, the Universe & Everything

1 minute read time.

Well we are getting better at this stuff. Armed with a million questions, we trotted off for only the 3rd consultation with the oncologist since my husband's diagnosis. You'd think I'd be quite good at this sort of thing by now, having spent the last 3 years accompanying my husband to consultant appointments after his accident and after the same sort of thing with my Ma, who died in the summer.

Rubbish. Each occasion is different. Each condition has its own jargon. Ask me if I'm wiser - NO. Ask me if I know how to handle the emotions any better - no again. 

It is so difficult pretending to be strong and trying to be positive for my husband's sake. A lot of you know this. Inside, I am a pathetic shivering jelly wanting this all to go away. Outside, I try to put on my intelligent face. I want people to stop fobbing us off. I want the truth. But that's not how it works because we must put a hopeful twist on everything we say for the sake of the patient. After all, the patient is the important one. And if we take away hope, what is left. I am told that miracles happen and so I shall hope for one of those.

Keep smiling or KBO.

Anonymous
  • FormerMember
    FormerMember

    Hi LittleJen,

    I'm terminal, with months, rather than years - bit of a bummer - and I think the line between 'pretending to be strong' and 'being strong' is a fine one, Ma'am, and you're just about to step over it !

    With Hubby's accident, then your Mum passing, it's no wonder you're feeling - what I would call - 'punch drunk'. Your emotions have taken a battering, LJ, hence the 'shivering jelly'.

    I should imagine that, at great emotional expense, you have also gained a bit more 'emotional knowledge', and - once you've managed to re-charge your emotional batteries - you will feel stronger, and better prepared to support your husband.

    Don't let your imagination get the better of you, LJ, go with what you know. If you're gonna let your imagination in on this, then let it imagine you and Hubby, climbing a mountain together. It will be hard, there will be many times when one or the other of you will consider giving up but, working through these times together - as the good team you seem to be - you will eventually reach the top. All that heart breaking, emotional effort will be rewarded by an incredible view !

    I wish you well Ma'am, you have my respect.

    Ian

  • FormerMember
    FormerMember

    Hi  Ian

    What can I say? We have never met, you are a total stranger and one who is facing his own Big Challenge and yet you take the time and effort to write an encouraging and sympathetic comment to my rambling blogpost. Thank you, thank you & thank you again.

    I shall hang on to the idea of the joint mountain climb, though I know the view may be incredible and though I am so very scared that I will be left at the top of the mountain on my own. There - I've said it. The thing that I keep running away from. The thing I don't want. The thing I want to wail about, shout & scream about and I do NOT WANT TO HAPPEN. And I know it will happen, don't know when, but it will happen.

    Sorry. I'm being so flipping self-indulgent and sorry for myself I need to give myself a good talking to.

    Will go and walk the dog, have a serious chat with myself and behave. 

    Jen

     

  • FormerMember
    FormerMember

    Hi Jen,

    Howl at the moon, rant all you want - you need to get that bit out of your system, before you can move on to the next bit - try not to 'over indulge' yourself, though !

    Please don't think me rude, Jen, but how old are you and Hubby ?

    I'm 58, I've been around the block a few times - until I was dizzy, to be honest ! - and I feel really sorry for the kids out there. Not just toddlers and teens - though that's bad enough - but the under 40's, with hopes and aspirations, a young family, perhaps.

    The hardest lesson for me to learn was the fact that  nowhere is it written that Life will be fair to me, I've had a few knocks, but it's all part of Life's rich tapestry.

    I have also learnt to prepare for the worst, whatever it may be. Anything less than the worst is a bonus !

    Here's something I wrote on here, it might help the both of you :

    http://community.macmillan.org.uk/cancer_experiences/emotional_issues/f/200/t/45744.aspx 

    I appreciate your thanks - *blush* - but it's just me. I can't sit back and watch people, less fortunate than me, struggle. Here's my email -  ian.hay@me.com - I'm happy for you to drop me a line, if you wish.

    Take care,

    Ian x