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Well it's my 6 week check up tomorrow and the first view of a comparison scan that will show that we have shrunk these bastards down. I'm feeling like I have a lot more energy and have just come off all my pain relief which must be showing that we're winning.
Had a great family gathering at Norfolk at the weekend and it was wonderful to have so much support and encouragement.
I'll let you know the full outcome of tomorrow's visit! Keep fighting.....xx
Well finally I have had surgery to remove the tumour in my liver and I am now at home recovering. It was all so much easier than my big op in March as I was lucky enough to have laparoscopic surgery and even though the op lasted just under 5 hours I feel I am improving day by day instead of week by week!
What I am finding hard is getting my mind set to wait again - 6 weeks for follow up with consultant and then I don't know how long till chemo starts. Even after 10 months of this drawn out treatment...
More or less two months after the initial diagnosis, I have today started the first phase of treatment: chemoradiation to shrink the tumour. My ECG was 'better' today and although neutrophil count a little lower than they would normally accept, I took my first Capecitibine this evening. No nausea yet, but this could be a cumulative thing.
I was in Northampton for two hours this afternoon with the repeat ECG followed by first radiotherapy. B was with me which was welcome because there was...
After the year I've had I was never sure I would reach our wedding anniversary - but I did, so had to celebrate with the family. As they all live 100 miles away from us we decided the easiest thing to do was go to them, so Thursday we packed up the motorhome and took off to a rally at Abingdon, a site on the cricket field just by the river Mick took the van and I drover the car (and suddenly realized after a little way that the furthest I had driven myself over the last 2 yeasr was about 10 miles...
Hi, just posting this on the off-chance that one of you may have come across this genetic mutation. There's apparently only around 100 families worldwide with this but Im hoping just one of them comes on here. Just had Joe's DNA results back and been told this is the devil responsible. I'd really like to speak with anyone that has this mutation and is having screening or has had a prophylactic gastrectomy - got a lot of very stressed relatives right now and could use all the help and advice...
It's been 7 weeks now since losing my Dad to this awful illness. How I wish that he was still here with us but without the illness.
I'm normally quite a strong individual that can take issues head on and deal with them, but this time it seems like I've been caught out....
I couldn't sleep lastnight, worst night in all, I must have fallen asleep about 5am ish. When i got out of bed late morning I've just been feeling 'empty' inside, lost, and a whole lot of other feelings I can...
Hi
I just need to write something to get it off my chest. I am at work and cannoit concentrate.
Twelve years ago I had ovarian cancer and am fine. Five years ago I had thyroid cancer and again an fine. Several weeks ago I experienced some changes in bowel habit, only for a week but long enough to make me think something was not quite right. To cut a long story short, two weeks ago I had a rigid sigmoidoscopy and because the registrar could not see enough (apparently the suppository had not worked...
Yes, wading through Limbo is truly energy-sapping, bit like being up to your shins in Grimpen Mire. I know there are people on this site who have spent much longer in Limbo than me, and my admiration knows no bounds. Keep wading folks!
Anyway, I spoke to Michelle, the surgeon's secretary again this a.m., and put the screws on a bit more than usual. (I am polite, but can be stern ). Anyway she is a lovely person, and said she was "more than certain" (I had to laugh) that I would be listed for Aug...
Where do i start, im writing this as it helps to write things down ,
I think half my trouble is ,when friends and family say are you ok ,i reply of course i am ,yet my heart will be breaking ,they dont understand so whats the point in telling them , if honest i cant even remember the last time my family asked me , but on here i can be honest at least as i know people will understand and it does make such a differance ,i dont feel so alone ,
I want to just say thanx to my lovely friends on chat...
I am not sure if this will help me by writing this down on here but here goes :-).
I moved in to my new house in June this year, two days later I found a lump after being in the shower. This lump was in my right testicle. I was quite shocked and scared as it was quite large and I was amazed that I hadnt found it earlier. I waited a week before going to the doctor - mainly because my work dont like it if you take time off to go to the doctor!
I went that week and saw two doctors who examined me...
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