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Been offline for a while, had my ups and downs and needed loads of sleep.
I have just been to visit my folks back in SA which was really great, was feeling better than I had in months. Same week I returned I had a appointment at Haematology. My BCR-ABL seems to be slowly on the rise. All my specialist said was that we may have to change treatment.
24 hours later I was in a spin, have read far too many research updates and possibilities, i do not actually know what the options are after Glivac,...
Just to day mum as made the decison to go a head and have surgery at the end of the month to see if the tumour on her lung can ve removed successfully. It was a difficult decision for mum to have to make. Being diagnosed with Mesothelimon in October as totally left both family and friends and specially mum in total shock. Im my mums eldest daughter of 45 and i will be my mums main carer and we are very close and im trying so hard to stay strong. I have the surport of my partner and family and friends...
Dad was taken into hospital last night due to him coughing up blood and apparently his white cells were up a little. We don't really know any more. his doctor will be round to see him today so hopefully we will know more then. I really hope it is not an infection cause we had it spelt out to us just how dangerous that could be! I am spending so much time worrying its hard to be positive. x
Whilst having IV chemo on 21 Dec 09, I had a "needle slip" which meant that for a short period Cetuximab was going into the tissue of my arm instead of into the vein. Ever since then my arm has been swollen and uncomfortable and about two weeks ago it became red, hard and really painful.
I'm currently on the third type of antibiotics, none of which have helped. At my insistence I've been prescribed codeine for the pain, which I am taking every six hours along with ibuprofen and paracetamol...
Last April I stood at the end of my son’s hospital bed staring stupidly at the junior doctor trying to figure out why he thought my son seeing an oncology specialist was a good idea, surely he would only want to see cancer patients … ohh!
i am like a different person now to what i was 6 months ago, i would spend all day sat, cleaning ,cooking, shopping and never stopping for a minutes peace , i was a whirlwind i never stopped, what was i missing ? a lovely lie in with lots of cuddles, breakfast in bed together, curling up on sofa togather all morning just doing crosswords and watching saturday kitchen , my idea of bliss, its just a shame it took cancer to make me appreciate what is important, not a spotless house but a loving family...
My mum was diagnosed with Mesothelioma last October and now mum will have to decide within 2 weeks whether she should go a head with surgeary to try to have the tumour removed or decide to just have chemo. Poor mum is so confused to know what to do as any one on here been threw the same thing having to make a decision between having the opperation or just settleing for chemo.
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