Some scary news

1 minute read time.

Been offline for a while, had my ups and downs and needed loads of sleep.

I have just been to visit my folks back in SA which was really great, was feeling better than I had in months. Same week I returned I had a appointment at Haematology.  My BCR-ABL seems to be slowly on the rise.  All my specialist said was that we may have to change treatment.

24 hours later I was in a spin, have read far too many research updates and possibilities, i do not actually know what the options are after Glivac, but hell was I scared.  Did not want to freak my Mum out, so tried to keep cool and casual.  But the idea of being alone and having to 'deal' with all of this is freaking me out.

Being the control freak that I am, I have got to maintain this strong exterior and have decided wisely/ not wisely not to say anything to my friends here, instead have confided in my friends abroad, which is seriousy silly, but as I have no idea what on earth is happening I really do not want to bother anyone needlessly.

Just wish I knew exactly what lies ahead, my siblings are not a match so what happens if I need a tansplant??

Scared and confused.

 

 

 

 

 

Anonymous
  • FormerMember
    FormerMember

    Hi gamegard,

    So you have a strong exterior. Well you will not bother anyone needlessly on this site you want friends to talk to and understand what you are going through. We all wish we knew what was ahead of us but on this site we dont care we take it day by day and month by month. What will be will be and thats life.  So if you want to talk to scream or cry this is the site to do it. Whatever you do dont keep it to yourself thats what your friends on this site are for we understand.

    Take Care and Keep Safe.

    Sarsfield.

  • FormerMember
    FormerMember

    Dear gamegard

    I've just read your biog and my heart aches for you. But one thing is certain - you are not alone as there are people on this site at all times of the day and night, so don't keep all your fears bottled up. I'm not a cancer patient myself, but I've had so much helpful advice about what my family is going through I'm so glad I took the step and joined the site. Sending you warm hugs and very best wishes. XX

  • FormerMember
    FormerMember

    Hi Gamegard

    I'm sorry to hear you're struggling with stuff at the moment - I too scared myself silly by reading too much on the Internet and I don't like worrying family and friends with my own worries!

    You mentioned that you may have to have a transplant, I just wanted to tell you that my sister wasn't a match and they found me a perfect match and I had the transplant in March 2009.  I also have a friend with AML and she is just about to go into QE in Birmingham for a transplant from a donor too.

    I wanted to tell you this as I thought it may help knowing that just becasue there is no match within the family, doesn't mean they wont find a match.

    I hope this goes a little way to help.

    Jo

  • FormerMember
    FormerMember

    Once again I have been reminded how supportive you all are.  Friends just do not understand and I am tired of burdening them with 'stuff' they cannot relate to.  They have their own problems to deal with.

    I think I am unnecessarily causing stress by reading too much.  The bottom line is I have no idea what they are planning and just need to tackle it when I get their.

    Sleepy Jo thanks for the info on transplants, I had written it off as an option as I was under the misguided impression that Glivac was a miracle cure. Guess no one said it was going to be easy.

    I am calmer and feeling a little more in control.  Am considering getting a kitten for company, but am now debating whether or not this is selfish or selfless???  I am lonely and warm, breathing company would be nice?!?!

    To Vals and Sarsfield, thank-you for reminding me I am not alone.

    Big cyberhug to all of you.

    Gxx