so confused

Less than one minute read time.

My mum was diagnosed with Mesothelioma last October and now mum will have to decide within 2 weeks whether she should go a head with surgeary to try to have the tumour removed or decide to just have chemo. Poor mum is so confused to know what to do as any one on here been threw the same thing having to make a decision between having the opperation or just settleing for chemo.

Anonymous
  • FormerMember
    FormerMember

    Hello Summersunshine

    Firstly I am very sorry to hear that your mum has Mesothelioma. My husband was diagnosed in November 2006. In the beginning we spent so much time searching and searching about what to do and we met some wonderful people. Some had surgery, some chemotherapy. We totally understand how difficult it is for you right now, wondering what to do for the best. There are different types of operation, some have the EPP and some have the decortication which is less severe. There is a lady called Jan who has a blog and she has had an operation and the chemotherapy and she is very helpful. She has a blog which is Jansmesoblogspot, if you google it you should get it. Also on here there is an EPP club where people have had the operation talk about it. It is a very personal decision I know that much. My husband didn't have the surgery, just radiotherapy and chemotherapy and he is still going strong and we have enjoyed a good quality of life. Please request me as a friend if I can be anymore help. Best wishes to you and your family.

  • FormerMember
    FormerMember

    Hello Strdust and thank you for your lovely message. Mum as made the decison only to day to go a head and have surgury to see if the tuomour can be successfully removed from mums lung. If all is ok with mums test results, bloods etc then she will have the opperation at the end of this month at Guys Hospital London. It was such a hard decison for mum to have to make and i cant beging to under stand how scared mum must be. We are a very close knit family and being my mums eldest daughter and just living across the way from mum i will be there for mum every step of the way. Im trying my hardest to stay posative and strong for mum as she will need me more then ever over the next few weeks and although i have the surport of my partner and family and friends its nice to be able to share my feelings and talk to other people who are going threw the same thing as my mum. Thank you again for your message Best wishes to you and your husband and i wish him well x