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10th june 2011 James went for his chemo but they didnt give him it on hold for now as he has a lot of nerve pain the tumour on his spine is pressing on some nerves so 5 days of radiotherapy on the go now so he has been admitted again xxx
Sometimes dont sleep so get up early(really early 1am) dont let it bother me as watch tv and had a sausage sarney at 3.30 am!!!!!!! .Went to car boot and home just before the rain.Going to tidy up loft in a mo.Monday morning going to docs and asking about the drug creon as cramps getting to me! Since losing so much weight blood pressure has dropped hence docs as was on medication before op etc so may not need to be on same dosage.I get dizzy with it.Asking about creon as people on macmillan site...
I say fank u.
Fank u all giv me love, kind word and hold hand all way long. Fank all hoo say prays me, hoo keep sayf in my hed and ther hed. All hoo say gud luk me and arsk how i be.
Be on mac mayke my smyal. Help me get beta, mac my famly.
Word nev enuf to say how feel, hard tryin say i want to. I lernin speeks all gen and words and all be gud try help me. I get fusdated and feel stewpid lots. I no fink ov words I want an wen cadee tawlk on mac, peepal wayt 4 me and help fink.
I slow get...
I dont know whether i am just being over sensitive, or not understanding or just being plain stupid. I must admit since my diagnosis i do tend to suffer with brain fog!!!!!
I had a phone call today from an ex work colleague, cant say we are great friends i would say more acquantnces, although she has seemed very interested in my plight so far. She knew i was having my biopsy results on Thursday and to be honest i didnt take her calls because i just didnt want to talk about my bad news, and her treat...
So, my last post was pretty desperate, and I apologise for that. However, I am proud that through sheer determination I got myself back to work, smoothed things over with the fella, even went out, did some shopping, cooked a kick ass lasagne and even kicked ass at work.
I will be avoiding alcohol until I learn to recognise the warning signs that I could implode/explode. I don't want to be a burden or a hassle to anyone and I also don't want my health to suffer. I know someone mentioned AA but I...
Am panicking just now, I have had a pain in the neck now for several weeks I've had physio, traction, painkillers you name it, I thought it was just a twisted neck but it doesn't improve with time. Have just had MRI scan and get results Monday but I'm scared of what they may say. Has anyone had simialer symptoms that can help me please. My head just stays in one position unless I sleep then it's better in the morning but only lasts about 30 minutes then back to square one.
If I have a choice between BCG & surgery, I've decided to opt for surgery. Having made this choice, I feel so much more at ease.
The prospect still feels somewhat surreal, but I hope that playing the scenario through in my mind will help me when it actually happens.
Well i havent wrote anything on here for quite some time, but we are now 12 months on from Derek's op (Total Gastrectomy) and he is doing so so well, he looks amazing just a lot slimmer 5 and half stones slimmer to be exact, anyway he had his 1st CT Scan since diagnosis 2 weeks ago and we went on Wednesday for the results and got great news, there is no sign of anything abnormal on the scan and he doesnt have to go back again for 6 months, the relief is over whelming, i could have kissed the consultant...
Got the results of my lymph biopsy today and unfortunately they have found some cancer in one of them so it looks like it will be axillary node clearance as well as all the other stuff on 23rd. I shouldnt be disappointed really, but i kind of hung on the words of my oncologist the last time I saw him and he said he thought that the nodes would be clear, given that all the scans etc came back negative.
I dont want to get down and miserable because up to now i have been so positive and just getting...
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