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Things are changing...
We had had our first Macmillan nurse visit and it was as if the weight of the world was lifted from my shoulders. I hadn't known what a care package was or that I could have had support. She managed to do in 10 minutes on the phone what I'd been trying to do for weeks.
I had last managed to get a GP out to my Dad back in October and when ever I rang and asked for a visit I had to explain the problem and a prescription was faxed to my chemist
Dad went downhill very...
A blog is supposed to be a personal account of the cancer journey. I've waited a few days before posting anything more, hoping or improvement. This hasn't happened.
First of all my wife; she is much worse and is almost unable to get about at all. We went to see the rheumatologist, I call her the Headmistress, who has diagnosed three things; osteoporosis, osteoarthritis and gout. My wife has been on the Headmistress's treatment for several months now but is worse rather than better. So...
I have had this little marble size lump for almost 15 years in my left breast. It is situated just of my at the bottom of my left breast.
I noticed it when I was 42, I am now 57. I remember going to my GP and he poked and prodded and said 'It is nothing'. So I went away, but I was still worried. I tried through the GP's receptionist to get a referral to the breast clinic from the GP, but it was no go. So I rang the breast clinic myself and was given a appointment.
My friend who had...
Just read back my last blog. So much and so little has happened since then.
Hubby has done really well.
He got into routine with stoma (ileostomy). Changing bag once a day was the best for him. Two days and he got itchy from the glue. Emptying became regular at about four hours after eating. Usually once through the night. Gurgling was occasional only and only two night time leaks - the cut off waistband from a pair of tights held the half folded ostomy bag too comfortably and didn't wake him with...
Almost 3 years since my diagnosis, it was just a routine 6 month check up. Except, the Oncologist says "I'll see you in 4 months" due to my Ca125 being slightly elevated from last time. It was disappointing but I assured myself that she was just being overly cautious UNTIL 2 days later when I got the call to say my Pap Smear was slightly abnormal.
And so it begins ..... all the old fears return. I haven't shared this with anyone yet (apart from hubby who is trying desperately to hide...
So it seems that Acinic Cell Carcinoma is flipping rare. I'm sure loads of cancers are really rare and this is my first foray to see what I can find about my cancer.
I have found a website that has lost of information about ACC - it can be found at:
http://www.aciniccell.org/index.html
What else? What else?
I know at some point over the next few days that my emotions are going to be all over the place. For now though I am thinking about the various actions I can take, what I need to tell...
After a hectic few days and nights the storm seems to be settling today. The symptoms have ranged from energy to lethargy, optimism to pessimism, sleeping well and not sleeping well at all.
By day, all was well until two days ago when the flow started to seize up. I was having both pain and frequency by day as well as night. Yet the symptoms were not quite like the unrinary infections I had some years ago. So I upped the fluid intake. Two nights ago was very difficult and I felt almost at retention...
