My first post on the day I got the news about my ACC lump.

Less than one minute read time.

15 Jan 2014

So it seems that Acinic Cell Carcinoma is flipping rare. I'm sure loads of cancers are really rare and this is my first foray to see what I can find about my cancer.

I have found a website that has lost of information about ACC - it can be found at:

http://www.aciniccell.org/index.html

What else? What else?

I know at some point over the next few days that my emotions are going to be all over the place. For now though I am thinking about the various actions I can take, what I need to tell to people, and how to maintain our lovely serene family life for my husband and daughter.

FormerMember over 11 years ago

Hello Bron ... I'm sorry that you have been diagnosed with this rare cancer and I understand all too well about emotions being all over the place. Five years ago I was told that I had squamous cell carcinoma on the floor of my mouth which required extensive surgery / radiotherapy ... but I'm still here !

It is difficult for our families, perhaps more so for them than us who have to go through the treatments, but there is support available for everyone. The best thing is to take it a day at a time and do pop over to our Head / Neck Cancer group for help ... we have all been there, so please don't feel alone in this. Take care and best wishes.

Joycee x
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