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In my last blog entry detailing my background, I completely forgot to mention that the pelvic radiotherapy first time around damaged my hips, leading to my having to have both hips replaced, 12 and 16 months after treatment respectively. You would think I'd remember this, wouldn't you? Blame chemo brain! And also the fact that I was very lucky and both operations and recoveries were problem-free. But it's an interesting point that radiotherapy damages bones. Apparently it can lead to what...
Husband made a small fart saturday morning 18th january, 2 days after stoma reversal. And was discharged cos the beds on ward were needed.
To be fair the A & E had a busy night. But there was a wanderer in the bay and my hubby was the most ablest of the 6 beds and the nurses were short handed. G in the end bed got told to sit on it and leave catheter alone. Might have taken my man half hour to get to the end bed but the other 3 coherent guys used the threat anyway.
So hubby came home saturday...
This blog has been a long time coming. I've been roaming around this site, making the odd comment in the anal cancer (AC) group and in the incurable cancer group, but don't feel I quite belong in either, hence my decision to start a blog. The people in the anal cancer group are all going through treatment the first time around, so I don't feel I'm really much help to them because my treatment failed. So then I searched for people with metastatic AC and found two, including the very...
Dad is now in hospital again for the third time. He was taken in as he'd had a fall and the Mac nurse was quite concerned about him. He was taken to a super palliative care unit which is part of our main Emergency hospital. The care he received there has been amazing. The physical surroundings were like a hotel and the staff were well informed and put us at our ease. However he has now been transferred to our local hospital and it is like going from the Hilton to a Travelodge! The standard of care...
After two difficult days where my symptoms seemed to get worse things generally are much better today.
The pains in my right pelvis and leg had forced me to go back to using one crutch, on the left side, for walking outside the house. This was a step backwards as I had recently given up both crutches and was looking forward to longer walks to get fit again. Also, after starting the abiraterone about 3 weeks ago, the pelvic pain generally and my night frequency with difficulty both seemed to be much...
I have been wallowing In self pity for two week's now. my cancer Is not terminal. I can and will be cured. I am a great fan of medieval history and have decided to face this "dragon" I will fight. I will don my armour and mount my mighty Destrier and with my lance and sword I will fight you. I no longer fear you. I am Pagan. and I have my god's at my side. I take my ancestor's name "Saluayne" and carry It Into battle against you. If I should die It will be with my sword In my hand and my lance In...
My follow up with the consultant involved regular blood tests to monitor the PSA level. My initial appointment in August 2005, showed the reading was <0.1, too small to register. Every six months, a blood test confirmed the reading, until 2012, when a reading of 0.1 showed that there was some sort of activity. The next two readings stayed at 0.1 then it rose to 0.2. The consultants started to talk about radio therapy as an option, but I preferred to ‘watch and wait’, despite their insistence. In...
My visit to dear Dr Onc this morning was a success! We got on well! He had good news and explained than my apparent rise in PSA was a mistake, it's too early after only two weeks on abiraterone and things are going on OK. He was pleased with my progress and said so!
I'm so embarrassed to have sounded off as I did yesterday and acted as though my life was over. Thank you those who posted some sense to me even before you could have known it was OK after all.
What a difference a day makes...
I had the biopsy on the 23/12/13. then had to wait two week's for the result. within a couple of day's the burning sensation was subsiding and I was urinating almost normally. I was feeling so much better. then on the 14/1/14. I went to the hospital to hear the result's. I was expecting good new's because I felt so well.( I'm going to cut this short because I don't have a lot of time I should be hoovering) the doctor Introduced a nurse. a Macmillan Nurse. he then shuffled some paper's looked at me...
