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Since coming off the syringe driver the oral medication for pain relief just doesnt seem to be working and my throat has been really sore for the past few days. Swallowing has also become more of a struggle, I managed a finely chopped bacon omelette last week, now i cannot even manage a small plate of scrambled egg due to difficulty swallowing. I have had to increase the amount of nightly force feed via PEG tube to offset the fact that i am not etaing as much, i have no appetite and feel pretty miserable...
Well another good day. Pete slept on & off all day but he managed little walks in between naps & ate 3 meals a Mars icecream & a little chocolate... go Pete. He still having his his Costa Coffee urges to. Dunno how long it will last as he said his taste buds had started to change today but I'll take what we can get right now
The treatment on Friday was fine.
I tried to keep my eyes open at some points and now understand that the whirring is when the machine is moving to a new position (over my face, or more the right of my head); the beeping is, I think, like a countdown to something (X-rays, or radiotherapy) starting; I don't really know what the humming is. Does this matter even?? Not at all ... it doesn't phase me in the slightest, but I am one of those people who wants to understand the procedure. I remember...
So after completing his chemo yesterday. The sickness kicked in today. The staff have been fantastic & kept on top of it all day. Even had one nurse explain that its the brain that sends signals which create the sickness. It was really interesting. Other than this Pete is doing really well. Obviously dosed up with anti sickness orally & through syringe driver but he's eating little bits & has developed a liking for Costa Coffee & has even walked down to the shop 3 times today with me to get one lol...
I suppose I couldn't really expect to get through this treatment scott-free, and so it has turned out. The day before my Myto infusion I had a sore throat. Spoke to the Christie hotline as I didn't want to traipse all the way up there only to be told they couldn't treat me. But they said I'd have to go anyway as treatment would depend on the results of the blood test. So on Thurs morning we went to Manchester - by then I'd lost my voice. Saw yet another registrar - it's a different...
Is it Friday already? It's been a crazy-busy week!
Spring arrived properly with a bang (Hooray!). I've spent most of this week filming wildlife and taking photos of flowers as they pop their heads up in the garden. And I've finally seen a hedgehog (Hooray!). I think it's me ol' mate Whiffle but he's HUGE. He's being all huffy, puffy and grumpy at me which means he's telling me that this is his garden and to s*d off unless I'm a lady hedgehog. And seeing as there is at least one lady hedgehog...
Well I have had the right runaround concerning whether or not I would be given a PET/CT scan to confirm if my treatment has been successful. Fortunately the stars have aligned and I now will be having the scan on 28 March, instead of relying solely on monthly visual checks by my consultant. I have as I am sure you understand now got a slightly anxious couple of weeks to wait and am keeping everything crossed that all has been a success...
Well finally today I have managed to be rid of my syringe driver and switch to oral medication for pain relief and anti sickness. This means I am no longer reliant on being at home every day waiting for the 24 hour top ups from the brilliant community nurses. Work are also in the process of sorting me out a laptop so that i can keep a watching brief but am still some way off going back to work yet as until i get off pain relief totally i cant even drive which is frustrating. Still a day to remember...
This morning we arrived at the hospital with 45 minutes to spare and, having taken advantage of getting a free parking space for the first time, I decided to call into the Macmillan Information Centre. I asked about complimentary therapies and also brought away a leaflet about some therapies that are available locally for cancer patients - so I will definitely be calling them and arranging a session or two.
On the journey to the hospital I had called BUPA to ask about the possibility of switching...
