Since coming off the syringe driver the oral medication for pain relief just doesnt seem to be working and my throat has been really sore for the past few days. Swallowing has also become more of a struggle, I managed a finely chopped bacon omelette last week, now i cannot even manage a small plate of scrambled egg due to difficulty swallowing. I have had to increase the amount of nightly force feed via PEG tube to offset the fact that i am not etaing as much, i have no appetite and feel pretty miserable. To make matters worse my neck seems to be inflamed and much larger than normal, insinuating the potential of an infection. Will try and get to see my medical officer as soon as i can but not too sure what advice or additional medication they will be able to give, i do not want to go back on to the syringe driver but as it is a struggle swallowing pain relief orally this might be the only solution for now. Had visitors round yesterday which was a real tonic, a gift of beer for when I am better was thoughtful but made me think when will i ever be well enough to enjoy a beer (months/years!!?? so depressing). Getting a work computer to use from home tomorrow, and a day out with my welfare worker, it will allow me to keep a watching brief but it is far too soon for me to contribute and add value. I still worry about going back to work, which is some way off - after all I cannot even drive until I am pain free. Got to try and remain positive at this bad time...
