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my initial reaction was not to post this, but i decided to submit a post just to bring a close to my blogs just in case anyone wonders.
in the last two half years here is a list of my treatment and condition
july 2012 18x10 cm abdominal tumour , smaller growths in chest and lung, damaged left kidney
july 2012 - Nov 2012 4 weeks cbop, 9 weeks bep
feb 2013 - left kidney removal ,rplnd surgey
april 2013 - july 2013 tip salvage chemo
august 2013 chest lymph node removal - surgery
oct 2013 - nov...
I went to UCHL yesterday to see Professor Kelly. I always get a bad feeling when I have an appointment to see consultant's. they have never told me anything positive. It now seem's my bladder has attached Itself to my rectum. making It even more difficult to remove. one option Is to remove my bowel along with my bladder another Is to leave my bladder along with the tumour but I can't see how this can be done because they have told me the tumour Is untreatable. but they now say they could use chemotherapy...
Ended up back in hospital on the 6th with infection in wound where they took the lymph nodes. was still on antibiotics but had to have 4 x the dose intravenously. It took the Dr 4 attempts the get the venflon in my foot because my arms are out of bounds. I have never experienced pain like it I nearly crushed the bones in Robs hand and nearly bit a hole in the socks that I rolled up and put in my mouth! I guarded that venflon during that stay and luckily it stayed in because I could not have faced...
well, the sun is shining, clean white towels are blowing on the line, and I don't feel nearly as bad as I thought I was going to, praise God!
i am blessed. Mind you, I'm still paranoid about every little ache and twinge, but I've managed to keep off a lot of the meds, and just take the minimum. Common sense, so far, is prevailing! Mostly! I am a bit obsessive with the thermometer!
actually feel well enough to try driving to my RT appt later. It will certainly be quicker than transport...
Hello All!
Hope you're all doing OK as you can do being effected by this horrible disease.
I thought it might be helpful to some of you to share what I have experienced so far during having my treatment.
I had my 2nd full day (plugged in from 9am-5.30pm) on Thursday 6th November of R-CHOP chemotherapy. I had asked my lovely nurse if she would pop the injection in my left hand so I could message/eat with my right but struggled so after having both hand battered with a needle had no hands in...
I am due my second follow up
appointment with the RT team this week. Hopefully they will be pleased with the big improvement in my eating and subsequently the improved energy levels. I won't be running and marathons yet but I do feel more up to coping with more day to day tasks and I'm going into work 3 days this week. Not for the whole day, but we'll see how Friday find me
I got in touch with my macmillian nurse on Friday as my original consultant who did my operation said I should...
I'm in an emotional place similar to the one I found myself in when my Dad died: there is this briefest moment of relief when you wake up and there is no emotional pain what so ever... Then those few seconds get destroyed because 'you remember' that life has now changed and the pain comes flooding in.
This is the background...
The last few weeks have been hell. Six weeks ago I was admitted into hospital with severe abdominal pain, they presumed gallstones and I felt like the biggest wimp...
It's been a while since my last post due to a time of reflection needed as to where I am and where I am going. The fantastic news is that I am well on the mend with no sign of the cancer returning, eating well and back at work part time for now. I still have a dry mouth at night which means broken sleep but my saliva glands try their best during the day reducing the need for constant and incessant gargling. Over past month my food intake has improved greatly. From soup and scrambled egg I have...
Nov 1st was the 4th anniversary of my diagnosis. I felt a bit queasy when I realised what the date was, but then I congratulated myself on lasting this long. I'm determined to make the five years at least, even though I'm not disease-free and never will be.
The week of radiotherapy passed very easily. In fact it was a bit like a holiday. I quite enjoy staying at the hotel, there was time to go sightseeing, visit galleries, and indulge in some retail therapy. I bought a slinky leopard print...
