My Mum has mesothelioma, we're all struggling with what's happening to her.

1 minute read time.

My Mum was diagnosed with mesothelioma in November and she's been very depressed since. She's now had three rounds of chemotherapy and got the results of her CT scan yesterday. The doctor was very hurried and left her feeling a bit abandoned as he said they weren't going to give her any more chemo as her reaction to it was so bad, the tumour is 'stable' but no more, and there is more fluid on her lung. She's going back in 3 or 4 weeks… I feel like we don't know what to expect next. I think her cancer is quite advanced, and she doesn't think she'll make it to my brother's wedding at the beginning of April (because it's a long distance to travel). She isn't one of these fighters and survivors, she doesn't think she's going to feel any better than she does now. I'm hoping that after the chemo drugs are out of her system she will start to feel less nauseous and more able to eat and drink properly. Her Mum died of lung cancer in June (not mesothelioma) and all she keeps thinking about is any similarities between her experiences and my Nan's. A Macmillan nurse has been round to support her, and this helps for a day or so but then the negativity creeps back in. I have two young sons who love their Nanny very much, and me and my brother aren't ready for Mum to die (we lost our Grandad earlier this month and our other Grandma died three weeks before our Nan). I wouldn't be holding things together at all if it wasn't for having to stay on top of things for my children...

DylanFan
  • Former Member
    Former Member

    Hi Ruth and I'm so sorry to hear about your mum. Its still only a short time since she was diagnosed and as you say she may start to feel better once the chemo is out of her system . I have stage IV lung cancer and have been living with stage IV probably since april 2014. Was diagnosed earlier in January 2013 but it has progressed. However there are many surviving much longer. Its hard not to be negative sometimes and you are doing a great job keeping yo.ru mum going. There is a group here of people with the same type of cancer as your mum and you may find it helpful to post there. Also there is a group for carers where you may find more support here and another one for friends and family supporting someone with cancer here.You could ring the helpline for some support for yourself.The fact it is stable is good. Not the best outcome but a long way from the worst. Please take a look at the links and talk to others in similar situations. Very best wishes.Julie