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What a difference a week makes
After a week where nothing much happened (apart from the euros starting) and no significant improvements - frustrating but I'm sure I hid my disappointment well.... honest, this week has been full of positives:
Last week (22/9/16) I had a follow up appointment with my consultant following an operation to remove what I thought was a salivary gland tumour which has been biopsied and was benign. I dropped my kids off and went to the meeting with no thought for the news that lay ahead of me.
After my surgery (6/9/16) my consultant had said "it wasn't we thought" about the mass they had removed from my neck. Despite him telling me this, as I had had it biopsied under ultrasound I assumed that all I was going...
We've lost him. He's gone. I can hardly believe my last post was only 2 months ago and whilst things didn't look good, I could never have imagined this would be my next post.
He caught an infection and had to stop all chemo while he fought it, and obviously, well, he just couldn't.
I can't believe he's no longer with us. I really can't.
Radiotherapy is a lot harder than I had anticipated. Practising the Deep Inspiration Breathe Hold (DIBH) does not come naturally.
I have learnt a lot about myself recently. I realised that I thrive on being organised and efficient, I like to plan ahead and tick the box as I go along, always maintaining a degree of control. I like certainty and even when there is uncertainty, I like to know what all my options are. I guess you can think that as being organised or an annoying control freak. Since my diagnosis in April, I was still able to do that to a certain extent, I steamed ahead with booking the lumpectomy, within days of...
Sitting in a cafe in the high street, watching the world go by, I suddenly realised how many women have 2 breasts! In this new, single breasted normality, I found myself strangely surprised, and also aware that it was not appropriate to look at other women's breasts. Moving my gaze to my coffee cup, I reflected on my own new shape. At 58 and married for 31 years to a supportive husband, I do not feel that who I am, or indeed my femininity, is changed by my new shape. If anything I feel more feminine...
I’ve decided to take up the offer of changing my chemo regime to Folfox plus cetuximab.
It wasn’t an easy decision and whether it’s for the best I may never know but the decision’s made.
I’m currently on a cycle of CAPOX which ends this Friday and my new regime starts the following week. I’ve tried working out a timetable so I can let work know when I’ll be about but until I know how the chemo will affect me I can’t really say. I know when I’m in hospital for infusions but...
So its been a crazy month but I get my results from my surgery on the 3rd Oct and I am guessing my treatment plan .
I have gone through so many different feelings my brain feels very frazzled . I feel like I have a 1000 questions but don't know which one to ask first but then until I get my treatment plan there is no point asking them I guess .
Looking forward to my reflexology treatment I have booked in on Thursday with the local hospice although that in itself brought tears as it was another...
Hey I'm Anna and I write a online blog about having Cancer, I am 24 and have had a rare Sarcoma, Ewings Sarcoma since 2010 so around 6 years and ongoing. I am currently recovering from a major operation to remove half my pelvis and am trying to write about my experiences with Cancer.
I would love to help others through some of the tough life changing challenges that occur because of diagnosis. My blog is only my thoughts and not suppose to influence any decisions. It is a fairly new blog and...
I had already started to make some life changes when I received my cancer diagnosis, but it did focus the mind somewhat. I determined that regardless of how long I have (and let's be honest - none of us can possible know what's around the corner), I will live it with purpose. During the 2 weeks following the diagnosis, I thought about what mattered to me and made a notice which I have in my workroom as a reminder:
Live simply because I want to live rather than spend my life looking after...
