It's Monday again.

3 minute read time.

Monday 28 November 2016.

Another funny old day, the chemo nurse phoned at 9am to see how I was, I told her I felt fine and that the throat was feeling a bit better, just a slight dry cough, was advised to get some antiseptic lozenges, and phone back if it gets worse. 

So I went to the shops, got some lozenges and some knitting wool, I felt sad in the shop, last time I was in there I was so happy and excited about knitting a baby jumper. 

I'm more of a sewing person ,I love sewing but never get time now, I've made bridesmaids dresses, done upholstery, but my mum was the knitter and she was fantastic, She could knit while watching tv and produce these amazing Aron jumpers or anything you wanted her to make. 

I thought it was time I had ago. I found her bag of knitting needles a few weeks ago when I was visiting my Dad, as I opened the bag I was struck with this strange feeling, she was the last person to touch these needles and wool, just over ten years ago, all so neatly packed away. I found a half finished sleeve from a jumper she was making for my daughter. I cannot explain how empty and sad I felt because there are no words that could even come close. I would just have to learn to knit by YouTube. How sad I felt about that.

After a quick trip to the supermarket, Christmas everywhere, me trying to ignore it. I went home, had a quick lunch and started ironing. Put the TV on and couldn't find anything to watch. I didn't feel too great so took my temperature, it was 35.1 it says if it drops below 35 to phone the hospital, it was 36.2 this morning. It was too close for my liking so I packed up the ironing and went to bed, another dog walk missed.

 I just laid in bed and tried to believe what the oncologist told me, that they are going for curative treatment. I kept thinking that over and over again. I think it's hard having the chemo first as I am still walking around with this lump which is uncomfortable sometimes. It makes it so hard to believe, especially as I'd had the all clear not that long ago. And it's all such fragile thing. I must have faith and think of next Christmas and making up for all this mayhem. But nothing will make up for the fact that we will have missed our first grandchild being born at Christmas and his first few weeks, because of how my chemo dates fall we just can't go. I seem to be spoiling so many things lately for everyone. 

After a lay down my temperature went up a degree, so that was a good thing but it was probably because I tried my wig on and thought I looked like Tina Turner! What was I thinking? I'm sure it won't look so 'big' when my hair falls out. It looked lovely on Saturday!

I just don't want to get obsessed by all of this, when this niggly cough clears I will feel better about things. I cooked dinner as hubbys been so good cooking lately I thought it was my turn. He's been busy sorting a couple of problems out with our business, electrical and water... not good, bad news comes in threes as they say. I know he is trying not to show how stressed he is about it, we need the business to work as it's our only income. 

I just made simple food for dinner , food to me is a fuel right now, I don't enjoy it at all,  I force it down because I need to. But at least I can do it, and I am grateful for that.

Plus point to end, I'm sitting in front of the log burner, all warm, the cat is in the dogs bed, one dog is in the cats bed, the other dog is on hubbys lap because I'm typing. Things could be worse. Much worse. 

Stop this ride...I want to get off.







Anonymous
  • Oh Jm, one of those days ! I know how you feel, the other day I felt like I had been given a suspended death sentence ! But having had time to think about it all, I know that I could not have went on without any treatment. I was given a glimmer of hope and felt it had been snatched away. But really I am just back to square one, minus the tumour. I t has crossed my mind why bother, then I think because of my family and friends I have to make the effort, but most of all because I don't want to go without a fight ! So tomorrow my wife and I are going to my eldest sisters house in Edinburgh to meet up with her and my sister and husband who live in Kent, who have came up to see me. To know of the love and support from family and friends gives me the strength to pick myself up and continue with the journey. So you know yourself that you are stronger now than when you first started the rollercoaster ride from hell. Sure you will have doubts and fears, but you also have a loving husband and daughters and soon to be a Grandmother. Visualise your grandson helping you in the kitchen, or reading stories happy days to look forward to. I'm sure the dogs don't mind missing a walk in the cold weather especially when there's a warm stove to lie in front of, and you can watch the flames when the TV is rubbish. Tomorrow is another day, so have a favourite hot drink before bed, snuggle up and try not to let your mind run riot. Hugs and best wishes to you and your family

  • Thank you yet again Zappaman,

    Im sure you will find meeting with your family a huge comfort. I so hope you manage to get your swallowing difficulties sorted, that would make a huge difference for sure.

    I found when I was with my daughters I was kept busy and that helped a lot . Although the feeling of being on the outside looking in never really went away, but I am in a better place now than then, I've realised, because since then I've met with the oncologist, and started treatment, so I'm fighting back. I think I will feel more part of it next time. It was the not knowing, the feeling out of control.

    Like you said, we have to make an effort for our family and friends, especially as they are trying so very hard for us. This disease may shorten my life and it's blurred my horizons, but it will not take away my 'now.' It has changed me for sure, but I am stronger, and that will help me because I have to get through this treatment and see our girls are ok, our grandson born, and do some of those things me and my husband were planning to do. I want to go back to Scotland, (my dad is from Kircaldy) we've done a few trips, but always hurried, The Falkirk wheel and the Kelpies are on my list, we did the West coast just after my mum died, it was stunning. There, see I've got plans.

    Today we bought our grandsons pushchair/pram, on line, it was not how it was supposed to be, we weren't there, but I will be one day, pushing him along. Things are a long way from perfect, but at least I am still here and I will try my very best for everyone. We adapt and change.

    I don't think I mentioned this before, but we had a chap come to stay in one of our holiday lets in the summer, just before he left we were talking to him, he had been on a 5 mile walk, he was buzzing, then he told us he had recently had the operation for osophogeal cancer, same as yours by the sound of it, he had noticed months before that he couldn't swallow apples and certain foods, but left it until he couldn't hide his weight loss it from his wife any more, he was not tall and had lost three stone in weight. He showed us his feeding tubes incase he couldn't eat solid food while he was away, but they weren't needed, he was incredible, he was with us a week, out every day doing things, we didn't suspect there was anything wrong with him. I don't like recounting other people's experiences as it's a personal thing and because we are all very different, like our fingerprints, but there is hope and there are always exceptions to the rule.

    Well zappaman, I hope you get huge comfort with your family when you meet up.

    Sending the kindest regards to you and your family.

  • Thanks again for your kind thoughts and about the visitor's journey on the road. We will get there and I am looking forward to seeing some of my family today, and others in January. I'm sure the swallowing difficulties will be sorted over the next few weeks and my eating will improve. When that happens and I'm gaining weight my strength and stamina should get better, I'm looking at getting back to working in March or April. I'm glad to see you are in good spirits.

    Best wishes and hugs.