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Blogs

Create a blog

Blogging can be a great way to journal your experiences and share with others. Why not create your own cancer journey blog, or have a read of other blogs created by our members?

Unsure how to get started? Take a look at our help pages on blogs. 

Macmillan Information Blogs
  • Random act of kindness
    Random act of kindness
    6 months ago
  • The Changing Faces of Cancer- Scalp cooling, Hair loss and Regrowth.
    The Changing Faces of Cancer- Scalp cooling, Hair loss and Regrowth.
    over 2 years ago
  • If I could go back to the day of my cancer diagnosis
    If I could go back to the day of my cancer diagnosis
    over 2 years ago

Latest blog updates

  • To Hop-on or Hop-off is the question?
    Mr U 9 hours ago
  • WJ grade 3 Astrocytoma cdkn 2a/b non-deleted
    W J 21 hours ago
  • Cool Cap Relief
    TerryB 2 days ago
  • Living with Desdemona
    Desdemona 3 days ago
  • Today my coffee tastes like Christmas in Costa Rica
    Beesuit 4 days ago
  • One Step At A Time
    Phild26 4 days ago
  • Community News
    This is a place where you can read about everything that's happening on Macmillan's Community. From guest stories, to sharing awareness months, here is where you'll hear about all of the latest from Macmillan's Community.
    Dylan - Online Community Team 5 days ago
  • Multiple Myeloma
    Tess123 16 days ago
  • Mumofcancer
    Mumofcancer 22 days ago
  • Cycle 19 and not working anymore
    Emotions 24 days ago

Latest blog posts

  • Nickodemus Journey
    Hair and wedding

    Here we are post 2nd rchop and steroids session finished - in my down week I guess. And quite tired - but did too much yesterday shopping for wedding suit - father if the bride end of August 

    Dtr was hoping I wouldn't lose all hair - now getting very thin covering 

    On the positive - now fit a snazzy 38 regular suit size - fingers crossed for hair and no more weight loss

    Quiet week this week - feel ok bar fatigue 

    Former Member over 9 years ago
  • WHEN I'M 64...
    DAY FOUR

    I slept very well. I am still surprised at how calm I am. I have told my eldest son and he will tell his brother. Last week I was so anxious yet now I am so laid back its ridiculous. Reading up on it is the key. The more i read the calmer I become. Even when thinking about what songs I want at my funeral, if things go badly, I am still relaxed. I thought it could start with The Day Thou Gavest, Lord, Has Ended and finish with All Things Bright And Beautiful.

    I have received my appointment for the...

    Former Member over 9 years ago
  • Snakes and ladders
    Ten months after diagnosis

    Just an update as I've only just worked out how to use this properly ! Chemo was finished on 26th January , although I didn't experience any sickness I had some horrible side effects , blistered hands , sore and cracked feet , bloody nose , strange brown markings on my palms , and then anninfection in my nails which was horrific. Last week (almost five months this post chemo) my toe nails decided to fall off , just in the middle of all the hot weather - however these are all superficial things ,...

    jowoomot over 9 years ago
  • WHEN I'M 64...
    DIAGNOSIS

    Thirty- six hours ago at on the morning of Thursday 29th of June 2017 it was confirmed, I have bladder cancer. What's amazing is how calm I feel. After a week of frantic anxiety and prayers I had the hospital appointment and, after a flexible cystoscopy, I was informed that I have a tumour on the wall of my bladder about 2.5cm in diameter.

    About a week earlier I had noticed blood in my urine. There wasn't much, in fact my urine looked yellowish but when I looked at the white toilet tissue it...

    Former Member over 9 years ago
  • Nickodemus Journey
    Hair falling out

    oh dear - just into 2nd rchop and hair falling out!  Otherwise pretty good - a bit tired as I did too much today notwithstanding the steroids 

    Rest tomorrow lamenting what little hair I had is on its way out 

    Former Member over 9 years ago
  • Nickodemus Journey
    Second rchop

    went well again with nothing untoward - nurses took amazing care with cannula and time in dripping in the fluids.  Took about 6 hours this time - might be shorter next

    Good news that blood pressure a bit better 110 over 70: not brilliant but good for me.  Also other bloods improved so me need for the transfusion that was mooted.  Doc is checking ferretin levels to see if I need more iron 

    But constipated today so will continue with one sachet laxido plus morning prunes and apricots 

    As has...

    Former Member over 9 years ago
  • Nickodemus Journey
    2nd RCHOP tomorrow

    So - made it through first cycle relatively unscathed.  Feeling good today and up for round 2 tomorrow

    Just got back from blood tests to inform chemo tomorrow 

    Good to be on no pills save for allopurinol which don't seem to impact day to day health

    No laxido for 5 days and bowels coping fine - interesting to see when I might need again

    Blood pressure pretty good - still a bit puffed after any significant exercise - doc mentioned possibly upping of iron supplements (presently 210 mg...

    Former Member over 9 years ago
  • Poems. By .Me.*Ahem*
    I am the 1:9

    I am the 1in 9

    Who ever knew 
    I'd be the girl who
    Got the butt end of the deal
    Know how that makes me feel?
    Who ever knew
    I'd be the girl who,
    Youngest sibling
    Without parents at my bidding

    Who ever knew
    I'd be the girl who
    Nursed for 33 years
    To retire with cancer and tears

    Who ever knew
    I'd be the girl who
    Never had...
    Violetsniff over 9 years ago
  • Am I being selfish?
    Am I being selfish?

    My partner has multiple myeloma, he's been in remission for a few months now, but the sex side of things in completely non existent...... we are getting married in a few weeks and I'm just worried this is how it will be forever! I've looked after him for day one of his diagnosis, but I just feel so "alone". I know sex isn't everything but I miss the intimacy as it's been quite some time now!  

    Former Member over 9 years ago
  • All Gone Tits Up - Part 3
    Wednesday 14th June 2017

    I has enjoyed a couple of days off work before the Surgery.  it was bliss.  I walked the dog, I cooked, I read, I slept.  Although, I have to admit, by the time I got to Tuesday evening, nerves were beginning to kick in; overtime I thought about the surgery , I felt a bit sick.  Neither of us slept well on Tuesday night.  Van woke me at about 5am to show me the images of the Grenfell Tower fire.  My first, very selfish thought, was that my surgery may be cancelled, as we don't live too far from the site...

    Former Member over 9 years ago
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