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I have never written a blog before.
I don’t do social media.
I’ve not had cancer before my recent diagnosis.
So....according to eldest daughter who is seriously into blogging/writing/communicating with the world....now’s the time to start!
I have a sense of humour, sometimes wicked, sometimes just silly but to me laughter is an important part of life. And it’s the one thing I really don’t want to lose as part of this journey. Therefore I have decided to look for the things that...
Almost 9 months post surgery. Where has the time gone?
Just completed my second follow-up with the oncologist. He did an ultrasound on my abdomen and all appears to be fine. He did say that he wanted me to have a PET scan in October. Naturally the fear kicks in, so I asked if that was a normal part of the process. He explained that the ultrasound only covers the abdomen. The CT scan I had in June covers from the thorax to the pelvis whereas the PET scan covers the whole body from head to toe. I guess...
On Tuesday this week I had my 7th chemo treatment so only 5 more to go though I know the last 3 will be stronger. I must be prepared in case there are more side effects! I haven't written my blog for some weeks as each week is following the same pattern. The days on which I have the immunity boosting injections still tend to be the worst though nothing i can't cope with. They make me achy and even more tired than usual. I've got some really dry skin on my face and forehead so using E45 instead of...
I actually wrote this 2 weeks ago but forgot to post it. When I listen to other people's side effects and problems I think I'm doing quite well. I just hope the treatment is working! I've got very little hair left if that's anything to go by but am now quite used to wearing turbans and scarves. My weeks have now settled into a routine. The worst days are the ones when I have the immunity boosting injections. I feel achy and by 8 o'clock I'm really tired ready for bed but have trouble sleeping! Lying...
Sorry . . . but blogging like this helps me cope.
Today's topic is: How important it is to stay on schedule with the anti-nausea meds right after chemo day.
Yesterday my poor Terry seemed to have a bout with what they call "chemo brain". Seemed like he was having trouble finding words and staying focused, yesterday being the day after hit #6. He's had a couple of times when he struggled for a day or two afterward; but yesterday was rough for him. I could tell he was a little more...
So I'm sure those of you who are all too unwillingly familiar with the world of R-CHOP and its many side effects there is one that I have found (at times) quite amusing with my Terry and his prednisone + the other steroids they have pumped into him throughout his treatment. Yesterday, as posted yesterday, was his 6th and final chemo treatment. This morning, as with his other cycles, was the "morning after" experience. It can be quite funny, actually. How about the rest of you? Ever...
Whewww!!!! It's over. #6 done and done. YAY!
Today's last hit went well. Thought I'd just jot this down before turning in for the evening. Terry's feeling pretty good . . . lots of steroid sluggishness tonight, which he said he didn't really notice so quickly after treatment before. But he's so relieved to be done with chemo. The doctor was extremely happy with the labs. Anemia much improved, white count was over 6.0, and she said he looked very healthy, considering all he...
I had my meeting with my oncologist. It is a different doctor to the one I had previously, but I’ve seen so many doctors in the past two and a half years they do tend to blur.
The diagnosis is that I have 2 metastases on my liver and a lesion near my prostate and one near my left psoas muscle. No different to my initial diagnosis. But now I have a treatment plan. I am due to have 4 cycles of Irinotecan plus capecitabine. Irinotecan by iv on day 1 followed by 14 days of Capecitabine tablets...
Just had the news today. It's back. I have secondary Oesophageal Cancer in my Oesophagus and stomach.
Don't know the full extent of it yet, and won't know until Monday 10th when I have to see my consultant to discuss my next step, and if there is any further treatment I can have to keep me going a little longer.
Had the worse day possible, having to tell all my lovely work customers that I am closing down, possibly for good, having to tell family and friends. And the worse thing ever...
