Making sense of my feelings following skin graft on my nose

4 minute read time.

“What happened your nose?” The Big Issue seller’s question still runs through me. Mid April I had surgery to remove an infiltrative basal cell cancer from the tip of my nose. The 28mm wound was repaired using skin from my clavicle – now a lump of pasty looking skin on the tip, with two large blood crusts where necrotic tissue was cut away.

Today is the first day I am out without a dressing. Writing this is part of trying to make sense of what I’m feeling, much of which feels irrational. I’ve still got my arms and legs, right? I can breathe – all my organs are functioning … Then why is this so hard?

So you can understand me better (and maybe so I can find an anchor in myself, as I was before) I will tell you a bit about myself.

I’m a 63 year old woman … Actually – there the sentence stops. It feels like nothing else matters – that I have great friends, a worthwhile job, a house, a lovely garden. Something is overriding all that. It feels like my biggest pain is not physical ...

Yesterday, as I first left the consulting room, I felt an overwhelming sense of exposure and shame. It took me a while to grasp what that was … Shame for what? Images from the media flooded in – of beautiful women with perfect skin. They somehow merged with memories of childhood fairy tales. Snow White, in particular … She was beautiful and innocent. A prince fell in love with her and saved her. She was my favourite fairy tale character when I was young.

The thought is there immediately - that I am not, now. My face has been damaged. The face with which I great the world and by which people first know me. I dread going back to work – my colleagues seeing me. Finding out … what?

All my life I have tried to be … like Snow White, I guess, at some level. I have lived with the constant fear that I will be found out. That I will be shown up as a fraud - ugly, a failure, maybe even bad. Something in me is lacking. I feel that most at work – always that sense that I will have done something wrong, or not done something. Something terrible will happen and it will be my fault. I am a perfectionist and work excessively to manage my anxiety and maintain the picture I have created.

And when The Thing happens, people will turn ‘round and look … like they’re looking at my nose now.  And they will see …

Of course, it’s me that needs to see something … The fallen, broken Snow White in myself. The core failure of not upholding the impossible illusion of perfect beauty and innocence.

That will resonate with many of you. Increasingly too many of us are trying too hard, harming ourselves, even, to conform to what we are told we should be – beautiful, yes, but it goes wider than that. We have to be clever, earn a lot, be big consumers, men have to be dominant and powerful, women perfect wives and mothers. Of course, there is a movement away from that, but the stereotypes are still there and powerful, and we have taken them so deeply into ourselves that we are barely aware of them.

Until something happens.

I realise I have faced this conflict before, 35 years ago. I had entered an inappropriate sexual relationship with a man who was a father figure to me. This stirred up an internal conflict I was unable to resolve. Deep inside, barely visible in the shadows, rage was clawing to get out while Snow White did everything she could to be loving, giving and always available - including starving herself (I was bulimic for several years) and coming very close to depression and other forms of self-harm.

That situation and my bulimia resolved with the ending of the relationship and (it seems) my avoidance of fully committing to another. The situation resolved, but the stand-off between ‘the face I present to the world’ and my deep, dark sense of need, rage, impotence and failure continues.

Except now my face is visibly broken. I look into myself through the mirror and catch a glimpse of dark movement.

I don’t know how my story ends, but I know it has to do with recovering something from the dark – something that is strong and powerful and will remove the spell that has ruled my life. That sounds great, but I feel terrified of a tidal wave; of my safe and ordered world falling apart. There is a price to pay for transformation and part of me wants to hold on.

Can I fix my nose enough to hide the scars?

I know I am more than the face of my persona and the dark of my Shadow. I can rest in that infinite space away from my small, embodied sense of self. I can find beauty there. I can escape.

But there is something about the physicality of this wound that pulls me back, down, deep into myself. I stand in the forest of my depth, where things stir in the shadows. It is time to fight my fear. I must face myself, as I am, with all my imperfections.

I must find a way to accept, hold and love myself, to set myself free.

Anonymous
  • FormerMember
    FormerMember
    <p>Oh my god Ilona it brings tears to my eyes and prickles my skin to read and relate to your story. I&rsquo;ve 51 and single (divorced with two from kids) and just had my 6th BCC removed within a year, I could cope with the others on my body. I hide those scars as I do all the others. yep both physical and psychological. But this one is in the middle of my face!! I&rsquo;m 3 weeks post Mohs Surgery with a 2cm round skin graft from my lip to my nose. It&rsquo;s been hard to chew and talk. a lot harder to smile. The crazy thing is as a single woman who is also a perfectionist, rather than feeling elated that I&rsquo;m cancer free, I&rsquo;m so anxious about the ugliness I now see in the mirror. I feel ashamed about how vain that sounds when others on here are fighting to stay alive. Don&rsquo;t get me wrong. I&rsquo;m far from perfect, this feels like karma for all the things I ever did wrong, and is now confronting me head on. I got through the initial trauma of Mohs Surgery and now trying to adjust with this new me. I went back to work this week and went out with friends last night, still under the security of flesh coloured tape. I felt like everyone was looking at me with curiosity and sadness. I don&rsquo;t know how long it&rsquo;s been for you, but stepping out uncovered, wow I think you are incredibly brave. I don&rsquo;t think I&rsquo;m quite ready for that. As you so rightly say, this is far from the fairytale I thought I&rsquo;d be living. And (perhaps stupidly) I feel that if I was married or partnered and had that love that wasn&rsquo;t just skin deep, I feel that this would not be so bad. The idea of exposing all of my flaws to someone new, terrifies me too. I cried a lot in the lead up to surgery and it hit me again yesterday. Today however I&rsquo;m determined to get my mojo back. I&rsquo;m a strong. usually confident, independent woman, with a few scars ... but behind those scars is a few damn good stories and some terrific resilience.... if I can&rsquo;t love myself, no one else will right? Committed to getting my self-confidence back and sharing my story (maybe a blog) so that people like you and I begin to realise that we are not alone in this inner and outer battle, and that things will always get better. Heart️</p> <p>.&nbsp;</p>
  • Dear Jenn, Thanks so much for your response to my blog post. I was really touched. Gosh - you're on a huge journey too, aren't you. Six BCCs with now this one on your face, and in such a sensitive place, involving your lip. I'm so sorry and can so understand what you say about the relief at having the cancer out being totally overshadowed by the process of coming to terms with how your appearance has changed. People said to me how surely the important thing was to be cancer free and that it will all look better in a year's time. And that they didn't really notice it. Hmm ... that doesn't help now at all, does it, and for you and me the barely noticing is hard to believe. I was sad at you seeming to be critical of yourself, saying how you think it sounds 'vain' and you shouldn't feel like that, given how much worse other people are. I've felt that too - thinking about people who have life-threatening cancers or other conditions and/or are much more disfigured. But someone else being worse than you doesn't take away the impact on you! And I really think it is much bigger than 'being vain', anyway. It goes right to the heart of who we feel ourselves to be, in the eyes of others, but also for ourselves. I'm struck by what you say about feeling it's some kind of karmic pay-back and you have to face it every time you look in the mirror. That's hard, and it sounds like you are being very harsh in judgement on yourself. I'm trying to think what learning I can get from all of this, and I wonder whether you can use the impact of this BCC as a trigger to come to terms with whatever it is that you feel you may have done (in this or previous lives) and forgive yourself. if this was someone else, would you be so hard on them? In my case the MOHS was 13.4, and I have now been without a dressing for about two weeks. I've got to go back to work next week. (How was going back to work for you?) That's one of the areas I feel I need to get the learning around. I was still crying about how I look while talking to my homeopath this afternoon (I thought I'd worked that through, but no!!) but the bigger thing now is how I feel about work and going back. I feel burnt out. I don't want the intensity and stress of work anymore. I'm 63 and I would have retired at 60 if they hadn't changed the law! I've been turning all my financial figures (in as far as I can work them out!) this way and that to see if I could make it work. I just don't know and it feels like such a gamble. But on the other hand staying in a job that is too much for me now (and really, it has been for a long time - I've just been keeping going, not looking up and pushing all my feelings and needs down) also feels like a risk, in case it makes me ill again, or ill in different ways. I totally resonate with what you say about feeling that if you had a partner who loved you and could hold you when you needed it, that would make such a difference. I'm on my own too. Wonderful friends, but it's not the same. I miss having a partner especially badly at the moment. You sound very brave facing this new phase of your life. You have your strength and confidence to draw on and a sense of humour and perspective, but please don't push down your vulnerability and grief. Be gentle with yourself, and if there is no one there to wipe your tears, be kind and compassionate to yourself. I hope you do write your own blog. Let me know if you do! Sending you lots and lots of love - across half the globe, if you're in Australia, and a HUGE hug! :-) xx

  • Dear Jenn, I was reminded of our post, already two years ago. I wonder how you are now? Sending much love, Jeannet xx

  • Ilona, your feelings are beautifully written and resonate with me. Three years ago I had a nose graft for melanoma at age 61. I believe my fantasy of a youthful being ended then when I really looked at my aging body. I came to terms with the graft and appreciated my life on a deeper level. I’m not sure I gave up all my vanity though. Yesterday I received a biopsy from inner eyelid that is BCC and will be scheduled for Mohs. Probably a graft too. Disappointed as I am also on pembrolizumab for metastatic melanoma. I know others suffer from worse conditions but for me, I’m learning to deal what’s coming my way.