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My partner was treated last week with clofarabine and cytarabine and poor guy seemed to have every side effect going. Unfortunately, the staff aren't familiar with the side effects of these drugs. My partner thought he was a goner, he got Acute Inflammatory Response (soaring temperature, sweats) from one and the flu like symptoms of the other. After five days he got hand-foot syndrome. Thanks to the MacMillan treatment information I could see that he was having side effects but the staff kept...
Off to meet someone (chemotherapy nurse perhaps - starting to lose track of who does what when!) tomorrow to talk about the chemotherapy course I will be taking to complement the radiotherapy. It is an oral dose so I think I'll be bringing the medication home with me.
I say 'home' but actually we are on holiday this week so I'm traveling over from Center Parcs. It's not ideal because we've decided it is better for B to stay with the girls rather than come with me. This appointment...
Hi to all,
Following my last post, I have now got holiday insurance with The Nationwide and all very simple on line.
So now all I have to do is get excited, not had any sort of holiday for 7 yrs. Before I was diag with bc, my hubby was very ill.
Thank you all again for your help and advice.
Take care all.
Vee.xxx
Well what a day!!!!
Today mum has had blood tests, x-rays, ecg's and ultrasounds.
Blood tests have come back that her blood count is low at the moment and put the number 60 (whatever that's meant to mean) on it. Apparntly if it drops as low as 10 or if she starts showing signs of any infection they will do a blood transfusion.
Because of her low blood count now she needs to be extra careful not to pick up any infections of any kind.
I think now the seriousness of having a demolished immune system...
Tomorrow it will be 6 years since my Mum died. I was upset at the time but got over things pretty quickly as she was 92 and just went to sleep. Also I had my own family and was very wrapped up with them. Last year when Seve got ill I broke down and told my daughter that I wanted my mum to put her arms around me and just cuddle me. I think she was a bit shocked to see a 58 year old want her Mum!! Steve died in November last year and having read Jenni's blog about how things were this time last year...
I lost my hubby paul last september. I miss him so much. It haunts me more now of the terrible pain he suffered and his fight to stay alive then it did when we was living through it .
Is there anybody out there like me / Paul was 54 when he died. he had lung that spread to his bone cancer. In the end it was every where. he lived just a few days under a year from diagnosis.
It was the most dreadfull and sole destroying time of my life . Plus I nursed my dad who lived 6 months after being diagnosed...
I came home from hospital yesterday from having a liver resection & gallbladder removal.....very sore & painful but apparently op was successful....anyone have any experience in this area?
sarah
Today would have been my dads 50th Birthday he went to sleep 18 days ago (sorry i can't help but count the days....it feels like yesterday and years at the same time) So i got up feeling very strange about today not knowing whether to be sad or to celebrate for him.
I have 3 very young children so we decided to celebrate his special day.
We met Mom, Nan and my bro and sis and we all went to our local park to release balloons from the children with their messages but the letters were too heavy...
Well I'm happy to say we had a good weekend.
Saturday saw our morning jaunt to the cafe, though Mum refused to use her wheelchair to go to the cafe.
On the plus side she had phoned me at work on the Friday to tell me that her disabled badge had arrived.
After a slow walk and back to the cafe from the car park, we headed off to the park where I knew there was a brass band playing.
For this I made her get in her wheel chair, if not only for the fact you cant guarentee if there was going to be enough...
Yuk, and oh no! were my first reactions to finding my 'peter pointer' finger nail hanging off. Am not sure what to do once it off to protect my nail bed, any suggestions greatly received. Finished my chemo (3 FEC100 and 3 TAX) on 2nd July and wasn't expecting this!!
Thank you,
Alex
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