Hello everyone.
I was diagnosed with Vin3 back in 2016, and been having numerous biopsies/surgical excisions since then. (I’m 30 btw)
My next biopsy + excision is scheduled for next week. For a long time the only symptom I had was grayish/blackish patches around my vulva, however this time I’m also having some sort of strobbing paiin my vulva that really pushues the limits of my pain tolerance at times. I’ve never had it before, and unfortunately I haven’t had the chance to discuss it with my gyne-oncologist yet. So I just wanted to ask if any of you experienced this before. I can’t help but thinking it might be a sign that things are progressing down there
Thanks in advance for sharing your experiences and sending you all virtual hugs.
Hi there, I have been diagnosed since 2014 with Vin3 and like yourself have had a number of operations and biopsies. I occasionally get a sharp shooting pain inside and at the centre of my Vulvar. My recent biopsy said it is still Vin 3 and waiting for an operation in two weeks time.
Try not to worry yourself until you get the results as I also convinced myself that it was something more sinister, thankfully it hadn’t progressed to cancer.
I’m 47 now and had it for 5 years. My heart goes out to you having this at such a young age xx sending hugs right back at you xx sarah
I have just been back for check and another cluster of vin been diagnosed have been offered imiquimoid which I have declined as had this twice and made me ill. Next sterp is mapping biopsies. This is the 4th time is there anyone else in same position , agony most days now and getting me down
Hello, I have been suffering with a combination of CIN3, VIN3 and AIN3 for the lasts 10 years it’s been horrendous. Just keep going with it though. It will be worth it in the end but it’s a struggle to get there. I would sugar coat it for you but there no point and sometimes you will want to give up but turn that emotion around and make it fight!! You will be amazed what you can get through. Keep going and stay strong if you have a down day let i just be the day and move on the next day. Good luck
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007