sex after a vulvectomy

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Hi Ladies 

I think only women who have had a vulvectomy can possibly help me with this.

I had my operation 23 February it was a long procedure with reconstruction. 

I lost my Clitoris. 

Nine weeks on doc gave me all clear to have sex.

Husband and I made a very cautious attempt. 

It was a disaster and left me in floods of tears. I felt arousel and we used lubricant but my Vagina is now so small, penetrative sex impossible, and some bleeding. Not exactly an aphrodisiac. Will it get better? is orgasm even possible without a clitoris. ?I just don't know what to do and feel very upset about this and cheated ,even though I know surgery saved my life. 

I know this is personal stuff but anybody got any advice or practical tips on how to navigate this.

Also I'm still wetting myself on the way to the toilet usually first thing in the morning when I wake up with a full bladder is this normal? how long will it continue  can enyone share their experience. 

  • Hi  

    Sorry to hear of your trouble with intercourse. 

    I haven’t tried to have sex, but do have experience of my vaginal opening being tight, which has caused pain using tampons and having my smear test. My consultant suggested dilators to help stretch it. It could be worth seeing if this is an option for you. 

    I think surgery and recovery is different for everyone, but when I needed the loo, I needed it now. My understanding is that it was due to them cutting through muscle. With time it  got better. I can’t remember how long, but you’re only a couple of months post surgery. I would give it some time and if there’s no improvement in say 6 months then I would have a chat to your consultant. I say this as mine suggested waiting 6 months and letting them know if there was no improvement. At which point they would have referred me to someone that specialises in the area. 

    Happy to answer any questions you may have. 

    Take care,

    Vulval cancer warrior xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi, I  had a vulvectomy in January last year. So it's been over a year now .

    When I first tried intercourse with my husband it upset me aswell.  It was really tight and painful and there was a lot of numbness. I can honestly say that I thought it would never be enjoyable again. 

    But over the months and a lot of lube my inside has slowly stretched again. ( sorry if it's a bit TMI) The numbness has go alot aswell  ! 

    I do orgasm now.  It's a new normal and it's nice. So please don't worry to much , it just take a bit of time. Good luck and sending hugs . 

  • I didn't lose my clitorus but they took a chunk out of my hood when they removed my right labia in January. The stitches went up the center of my clit and I can't feel a thing. It's very frustrating to be in a relationship at all due to the lack of motivation that comes with the lack of ability to enjoy sex at all

  • Hi there

    All I can say is don’t give up.It won’t be the same as it used to be and that is tough to swallow but….. You can still have an Orgasm I know that this is personal stuff but frankly I’m beyond modesty after everything that’s happened. So here goes try a vibrator you’re clitoris is more than just the nub most of it is underneath the skin from your opening to where the clit is so vibration in this area is pleasurable. 
    it’s not ideal and maybe not as intense as it used to be (for me) but I didn’t think anything was possible.

    I wish you all the best.

  • Believe me I should own stock in every manufacturer by now. It doesn't help