My Life After Having A Radical Vulvectomy

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I was diagnosed with Vulval Cancer back in 2004, and back then there really wasn't  a lot of info available about how deep it was (at least I couldn't find any) anyways, the after effects that I expCryienced and still experiencing CHANGED MY LIFE ALL TOGETHER!! The Dr that I had did not educate me like i think he should've,  and at that time I really didnt know what questions to ask.. but as far Cry sex,, penetration is a NO!! When i did try to have sex 6 months after my surgery, I was so humiliated and embarrassed  because I wasn't able to satisfy my partner.. I hadn't been offered reconstrucCryon surgery, dialators, or anything!! And through the years, it's left me with scar tissue.. I avoid trying to get in a relationship, because having sex is gonna come up sooner or later, and i dont hCrye the energy to be trying to explain what's going on down there Cry

  • Dear Loner, you have my heartfelt support.  I had a radical vulvectomy in 2023 including removal of clitoris.  I fully know where you are coming from.  At my age now, 75 sex isn’t as prominent as it was but I couldn’t bear penetration as it is uncomfortable and narrow in there, from my perspective of no clitoris then isn’t enjoyable.  My husband is understanding and we manage.  I am sorry you feel like you cannot get into a relationship.  Maybe chat with one of the Macmillan team here and they may be able to offer some help and guidance.  I am sure there is a loving partner out there for you.  Don’t remain a Loner for too long.  You are never alone here.  

  • Awwwwl Heart thank you so much ma'am for the encouragement as well as a response.. it's taken me 21yrs to find a forum where i can speak about how that surgery affected me.. once again THANK YOU for taking theHearttime out to read my prior post.. Heart️Two heartsHeart️️

  • Bless you.  On this forum we all support each other and know how this diagnosis and treatment affects us.  The psychological effects are often more significant than the actual medical issues.  I know that I feel less of a woman, both to look at and to feel.  This issue isn’t really discussed in the hospital surroundings, but here we do discuss it.

    As for your scar tissue, my surgeon suggested that I apply hydromel emollient a few times a day, this softens and moisturises, which makes me more comfortable. Please stay in touch. Heart️

  • Thank you!! I never heard of that!! Then again I began to feel like "It  is What It Is" ya know? But do you think that that would help? Especially since it's been 21yrs since I had the surgery 

  • Your GP may know but I think it is worth trying it.