Hey there my beautiful Vulvar Cancer and VIN Warriors, I want to wish all of you the very best in your journey with each other on this site, with your doctors and their teams and with our family and friends...do not be ashamed of this disease and spread love to all those in need of support and be your own advocate by writing and documenting all that you can to be up to date on your care and treatments.
I will post my "tips, advice and opinions" letter I have saved on my computer at the end of this post so you can copy and paste it somewhere so you can share it in the future and add to it your advice and tips.
I'm making this sound like my last post because it probably is. You see, I am a veteran here, and if you've seen my posts before you all know I've had my share of VIN and recurring cancer 8 times and spreading to my bladder, the after affects of chemo, radiation, 27 surgeries including the removal of my urethra, clitoris, lymph nodes, half my bladder and my story goes on and on. I truly believed that with my positive attitude and with God guiding me to be a glimmer of hope for all of you, I know that HE has kept me here on earth to help all of you that are just now beginning this nightmare or just dealing with your 2nd, or 3rd surgery and you need to hear that we are all different, heal different and have doctors that handle our treatment differently, we also all have very different pain levels and tolerances.
So the reason I am leaving, well, I've tried to be positive and help all you lovely ladies with empowering words and tips and advice on care after treatment, surgery, etc. but I've had my posts tweaked, removed and pictures removed for fear of emotional distress to others on this site. WELL, the picture I posted was of my overnight catheter bag, you know, many of us come home from surgeries with a catheter for several weeks until we heal enough to have it removed. I never showed where mine came out of in fact I don't even remember the context at this point but if I posted the picture it meant perhaps I was having a bad day myself or I needed to let someone know how important our check ups really are as since my cancer spread to my bladder, half was removed and now my catheter comes out of my lower abdomen because my urethra had to be removed because it was full of cancer too. That is my reality, the cancer has taken so much from me and I don't want that to happen to any of you...I am just frustrated with my reality being censored and removed however I am one of the most positive role models on this site since finding it well over five or more years ago. I've been battling VIN and Cancer for 11 years now. I will continue on my social media v cancer groups and hope to hear from you all again some day. Until then...I will continue to pray for all of you. Please feel free to share and add to my tips list...
Sincerely,
Lisa from USA, MI
