Hi my name is Frances I have just had two operations to remove a papillary thyroid cancer and now 12 week post operation. I just met with my oncologist for the first time this morning to discuss the next steps and I’m booked to get iodine radiotherapy...
Hi anyone got any experience of this? Recently (Last week) advised I have this and there is basically nothing to be done. Seems to be very little info and certainly nothing positive. any help or pointers most welcome indeed!
Thank you for letting me join. I have been diagnosed with Thyroid cancer that has spread to my lymph nodes and lungs and liver. I’ve just started on my targeted treatment of Retsevmo Died anyone else take these and how are things going regarding side...
Hi all I'm just hoping someone might be able to give me some advice as I'm at my wits end ! I had my thyroid removed in 2O23 after a diagnosis of papillary thyroid cancer with a follicular variant. I have ticked along on 100/125mg alternate daily dose...
Diagnosed 3/24. Since had major neck op followed by Radioactive Iodine. Did not work. Nodules now in both lungs and after 30 lots of radiotherapy summer 2025, cancer remains. Now looking at more radioactive iodine or some form of immunotherapy via ‘TKI...
Hello everyone, I hope you are all well. I am new to this group, and quite nervous sending this message. I was diagnosed with a rare thyroid cancer in 2014. I had a full thyroidectomy and radiotherapy. All has been well, until 2023. A nodule was...
Hi all So i have had mutli nodular goiter for 5+ years (was picked up on CT scan when investigated for coughing up blood) and had ultrasound ('US') and told it was benign. This has grown to 5cm in last 18 months and started choking on food and struggling...
Hi everyone, Wanted to introduce myself and say hi. I'm a 43 year old mum of 1 and 3 fur babies. I'm 2023 I had a blood test and scan because I had new symptoms. I was diagnosed with Hypothyroidism at the age of 26. The scan and blood test showed...
Hi everyone! I am currently around the one year anniversary of my diagnosis and surgery. I have (had) thyroid cancer - surgery to remove my entire thyroid followed by radioactive iodine treatment. I am awaiting my 9 months post treatment formal review...
Hi im not sure if I've asked this question before but I had thyroidectomy in july 2024 for small low risk papillary carcinoma thyroid cancer just wondered if tsh should still be suppressed as tsh in December was 2.64 endocrinologist said it was fine....
