Diagnosed 3/24. Since had major neck op followed by Radioactive Iodine. Did not work. Nodules now in both lungs and after 30 lots of radiotherapy summer 2025, cancer remains. Now looking at more radioactive iodine or some form of immunotherapy via ‘TKI’. Does anyone have info they could share regarding the latter re treatment, impacts and effects etc…
Hi Tiger2 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
If you don't get any replies here, it might be an idea to also join the secondary lung cancer group. If this is something that you'd like to do, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
