Hi everyone!
I am currently around the one year anniversary of my diagnosis and surgery. I have (had) thyroid cancer - surgery to remove my entire thyroid followed by radioactive iodine treatment. I am awaiting my 9 months post treatment formal review.
I am very emotional recently - I feel very alone with my feelings and thoughts because I don’t have anyone around me who gets it. I joined the community to chat to people who get it. Who get the ‘I have cancer’ part. Who understand the feelings of lost after treatment, the ‘whats next?’ How to navigate all this emotionally. It is hitting me now.
Hi Zsazsum,
I see how tough this is for you, and cancer definitely makes you question everything. I was only diagnosed recently and am awaiting surgery very soon. I’ve felt everything from sadness to shock, and I still don’t know how I got here or what lies ahead of me. It can feel so isolating.
I think it’s absolutely okay to feel the way you do, and there’s no right or wrong in this situation.
It’s hard to be in a situation we didn’t choose, and it changes everything.
Thank you so much for responding. I am so sorry you are on this journey too. Happy to chat privately if you’d like - not really sure how this platform works as I am new to this.
Hi
I totally understand where you are coming from. I am just over one year after surgery and RAI treatment was in July 25. When I talk to people particularly my husband, he tends to say that I am all okay and should be celebrating that I came through it. They don't understand that the whole experience is very scary and that every blood test puts you on edge. Trying to get thyroxine levels right is also very stressful. It does make you feel very emotional and tearful. I found that writing everything down helped a bit even when I was awake most of the night. To be honest, the only people that can understand us is someone that has been through it.
I have been seeing a Therapist for a few months to has worked with people who have had cancer and that has helped a bit but I do still have days when I feel down and I try to tell myself that the next day will be better. I also started going to yoga. Going for walks on a nice day. I really hope you start feeling better soon but I know how hard it is
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