Hi just joined the group I’m 7 years into medullary cancer just started selpercatinib I’m desperately trying to find others in the uk on the same meds to here there stories with it if anyone can help or knows of anyone who is on it or starting please...
Hello, I’m Char, 28, and I have just this week been diagnosed with suspected papillary thyroid carcinoma following an ultrasound and FNA. My consultant has advised me the next steps will be either partial or total thyroidectomy and I feel really scared...
I have just gotten back from a CT scan, which has driven my anxiety through the roof! I had a biopsy on 13th August and ever since then, I have been having pains into my shoulder, up my face down my back, arm and my thyroid is more enflamed! I had no...
Hello. I'm new here. I have Oncocytic thyroid cancer and am facing my second operation full thyroidectomy early August . I'm just seeing if anyone else can share information with me about scar pain, RAI success or otherwise and anything they found...
Hello there, After discovering a large - 6x7cm nodule in April, a FNA that came back as benign, and a thyroidectomy in mid-June, it turns out I have classic papillary cancer. It was 8mm by 5 mm, encapsulated, no lymph node involvement. So no treatment...
Hi all. Thank you for sharing all your experiences. You are brave. I am in the process to let it sink in my understanding about my recent metastatic papillary cancer diagnosis, confirmed on tge 24 July 2026. Words new to me. I have always looked after...
Hi, I was recently diagnosed with thyroid cancer, and I’m really struggling to adjust to everything that has happened. It all started with a lump on my neck, which I had removed along with part of my thyroid in March. In June 2026, I was told that...
I had surgery to remove a u4 ty3 noudle left side and parathroid odema on the 18th june and its taken 12.months to get surgery and on a visit to.my endo doctor to.check.my calcuim on friday and ive asked if the path lab came back ans she told me it had...
Hi I am 10 weeks post op and trying to get back to a normal life. I,m a carer who works 10 hr night shifts. I did my first two together at the weekend and I,m extremely exhausted and in alot of pain now. Have I rushed it too quickly ? It,s really getting...
Hi, I’m 38 and a completely solo mum to a nine month old girl. Her dad and his family are not in our life. i am sorry, I don’t know what I want from this atm, I guess just an avenue to vent to someone who doesn’t know me personally. I have been diagnosed...
